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DiscussionCLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: 1 day ago | Replies (410)Comment receiving replies
Replies to "I ended up in an emergency room two weeks ago with inflammation on my brain. They..."
Hi My name is Bob. I was diagnosed with Clippers in July 24. I had all the balance issues. But I can live with that. I walk with a cane but exercise every day. One thing I tried was going to Acupunture. Twice per month. It helps with inflammation. Speech issues had been a problem but getting better. My only advice to you would be to try and reduce any stress any way you can. My doc is switching me to Infusion therapy. Better than predisone. Anyway best to luck to you.
Connect

@artmom Welcome to Mayo Clinic Connect! You’ve come to the right place! We’ll try to help you but we can’t tell you what to do or pills to take because we’re not doctors. Everyone explains what has helped/not helped with their own experiences. You’ll find that out pretty quickly.
I tapered prednisone (or tried to) 3-4 times before I was successful. I learned that the doctor is there to help ME so I explained the I wanted to taper slowly. When I did it at my speed, it was so much easier! Always just explain what works/doesn’t work and you’d rather do XYZ. Just be careful especially since you’re not a physician.
Learn as much about clippers as you can. You’ll be able to understand the doctors and ask questions. And you cal always ask questions here. We have a group of really good people.
That’s enuf from me, it’s past my bedtime!