Connect
← Return to I have a neuroendocrine tumour in the small bowel and liver lesions
Discussion
I have a neuroendocrine tumour in the small bowel and liver lesions
Neuroendocrine Tumors (NETs) | Last Active: May 9 10:04am | Replies (61)Comment receiving replies
@fraaseo
I am also Stage 2, Grade 4 small intestine metastasized to my liver with multiple tumors, all sizes. NETs discovered 2.5 years ago.
I am on Everolimus (as a support for my 4 week -2 shot (180) mg. of Lanreotide and it is working well for me. I was told it would be a bridge until I can start the Clinical Trial of Alpha PRRT. The Beta PRRT caused my tumors to quickly grow.
I hope you continue to feel good and monitoring is so important as we all express differently - Zebras.
Replies to "@fraaseo I am also Stage 2, Grade 4 small intestine metastasized to my liver with multiple..."
@ricki8 thank you so much for your response, still learning how to live between tests. But getting better… Hope everything goes well for you on the Alpha PRRT treatments..
Connect
@ricki8 Do you have any side effects taking Everolimus?