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Has anyone noticed a change in behavior?

Caregivers | Last Active: Oct 19, 2025 | Replies (17)

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Profile picture for vette98 @vette98

My husband (this is a second marriage) is a retired Air Force pilot. He has always kept his belongings in an orderly fashion but since he has been diagnosed with PD and the disease has progressed he is a "stickler" about time and the things he uses every day. His meals have to be on the table at a certain time. Medication must be taken on the dot (timewise). Everything he uses daily must be in the same place. He was such a sweet man when I married him but his personality has changed for sure. It is probably the progression of the disease but it's so hard on me as I am his sole caregiver. He has some help (thankfully) from the VA but this is only 16 hours per week. If I didn't have this I would probably be in the "nut" house! I was caregiver for my parents but had help from my sister for them. Now, caring for my husband alone is wearing me out. It would be different if his personality has not changed. Deep down I know he loves me but the harsh words hurt!

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Replies to "My husband (this is a second marriage) is a retired Air Force pilot. He has always..."

@vette98

Thanks for your input, @vette98! I can really relate on so many levels. I, thank God, don't have the PD illness to deal with but I think, just in general, serious illness of any kind brings a whole side of someone out in the open. Trying to find order and control over SOMETHING, ANYTHING, the patient can find when they lose those things makes sense, yet it leaves us feeling like those things are more important than anything else. It's so hard some days. I try not to let it get to me but it's really hard.