Connect
← Return to AML successful treatment
Discussion
Comment receiving replies
@loribmt hi , I hope you are doing well !
Firstly, I am sorry for late reply.
It's a while since we changed the treatment plan a little. We have moved to a governmental hospital to take his under social insurance where they don't provide Vidaza , we take ARA - C instead, with venclexta. Unfortunately after 3 cycle, his body doesn't respond positively: WBC got high numbers greater than 55000, blast cells 91 % .
1 week ago , we also changed the treatment plan to use combined ADRYAMAYSEIN 1 dose each 14 days and a 14 consecutive dose of ARA-C AND STOPPED entirely The VENCLEXTA, but count is still increasing, doctors seem to have no additional solutions.
Another important note, He caught a cold, cant stop coughing, which effects him badly in absence of immunity.
Replies to "@loribmt hi , I hope you are doing well ! Firstly, I am sorry for late..."
I am sorry to hear about your dad. I have AML and just finished my first cycle of ventoclax 14 days and vidaza 7 days. Had to have two blood transfusions as well. Going for a blood test and bone marrow biopsy if my counts are stable. I was also put on valaclovir 500mg twice a day and levofloxican 500mg and pasconazole which is very expensive to help keep infection away because of the venetoclax. Did they put your dad on any of these medications. They help protect you. Not saying you can’t get a cold.
Connect
@tawakol Oh golly, this wasn’t the news I was expecting to see about your dad. AML can be such a tricky beast and treatment isn’t a ‘one size fits all’; What works for some patients may not be the magic for others. We’ll be optimist that this new treatment plan will help reduce you dad’s blast cells and get him into a more manageable situation. Don’t lose hope…my blast cells at the time of diagnosis were 85%.
What an unfortunate time to get a cold. Keep an eye on his temperature if he’s at home. Like you mentioned, with his lack of immunity he is very vulnerable to infections. So if his temperature gets to 100.3 make sure there’s a call into his oncology team for direction. That can be an indication of an infection.
Sending you a hug in support. I know this isn’t an easy time as a caregiver. When you get a chance, please let me know how your dad is doing on his new treatment, ok?