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Living with Parkinson's Disease - Meet others & come say hi
Parkinson's Disease | Last Active: Nov 7 3:33pm | Replies (743)Comment receiving replies
@hopeful33250
I sometimes have difficulty swallowing but it's a major problem at this time. Emotional instability is very challenging and also extreme fatigue. I was previously very active. I continue to challenge myself but some days are just overwhelming and my body needs to rest.
Replies to "@hopeful33250 I sometimes have difficulty swallowing but it's a major problem at this time. Emotional instability..."
Hello again @esther589
I recall when my symptoms began, that fatigue was the most frustrating problem. I, too, was used to being active and had to curtail all of those activities that I enjoyed. Finding ways to be physically active without exhaustion was important.
I did find PD exercise classes, which were helpful. Most of these classes involved exercise while seated. There are excellent seated exercise videos for PD on YouTube, which are available without a fee (https://www.youtube.com/@PowerforParkinsons). If there is a Parkinson's organization in your community, you might check to see if they offer exercise programs for PD patients. There are also PD dance classes (and videos) such as the Mark Morris Dance Group: https://markmorrisdancegroup.org/community/dance-for-pd/
Have you asked your doctor for a referral for physical therapy? If not, please do so. There are physical therapists who are specially trained in a program called Big and Loud. It provides excellent physical and speech exercises. Here is a link with more information: https://www.lsvtglobal.com/
The more proactive you become, the better you will feel. You will post again and let me know how you are doing with this adjustment process?
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@esther589
TYPO
I meant "it's NOT a major problem'"