← Return to Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

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@loribmt Happy weekend, Lori. I just needed to reread your encouraging words after discouraging news on David's AML progression. Both initial treatments - Vidaza and Dacogen/Venetoclax did not work for him. Most recent biopsy still showed no mutations for any targeted treatment. He is not eligible for BMT due to prostate cancer which he takes Lupron shots for every 6 mos, decreased from 8.6 to 2.2. Clinical trials mentioned but not an option at the moment. He's going to get a port as he's been needing transfusions (hemoglobin/platelets) more than before. Seems we are at a crossroads and although difficult, staying positive through it all. The good thing is overall feeling good, apart from fatigue which what naps are for, right? Again, just wanted to reach out and thank YOU for all you do to support our community. Have a wonderful weekend! Teresa

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@terdor Aw, Teresa, I’m sorry to hear about David’s AML progression. Sometimes, in spite of the best effort of doctors and science, AML can prove to be a real bear! Those red blood cell infusions will give him an energy boost, along with the platelets keeping him safe…though no new hobbies like knife juggling for him, ok? ☺️

Having the port will really ease up on the arm pokes though. I remember having so many transfusions and infusions that lovely team in the infusion center became like family! Six+ years later and I still meet with some of my nurses for dinner a couple times a year. So the transfusions are not all bad and will be very helpful for David.

I know some days can be really tap the inner strength required to stay positive. But every day is so precious and remaining upbeat can make such a difference in our ability get the most enjoyment out of each moment.
Thank you for the update, Teresa. I’m here anytime you need a lifeline. ☺️