← Return to Prolia treatment for osteoporosis: What is your experience?

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@susan30

I'm at -2.9 for my hip & since I'm in rural N. Dakota I hv only a GP Dr & he suggested Prolia . I'm a bit afraid because even tho there are many good reviews, there are also reviews that sound awful. I have Microscopic Colitis & am taking the steroid med Budesonide 8 wks on & 8 wks off. My gastro dr says even tho I'm on Budesonide, that its ok to take the Prolia injection. I'm just wondering if I will see bone density increase bec of the steroid Budesonide. Its going to be a wait & see on my Dexascan in 1 yr from now. Today Feb 18, 2019 I'm scheduled for my Prolia injection.

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Replies to "I'm at -2.9 for my hip & since I'm in rural N. Dakota I hv only..."

Susan, do your research. I wish I had as there was a lot that my doctor didn't tell me, and Amgen's TV ads make it sound like a walk in the park. Some people are on Prolia with no problems, and others experience varying degrees of side effects. There are instances of doctors prescribing drugs for osteoporosis when they aren't needed, and others who are experiencing fracturing for whom they are a godsend. Are you on Facebook? There are support groups that are quite active with a lot of patient interaction. I didn't really want to be on Facebook, but my son helped me join with very limited exposure. I am on several groups, and would recommend Osteoporosis - Myths and Facts that is owned by a person with expertise in bone health. I have learned a lot there about diet and supplements as well as the medications. This person is also an expert with DEXA results upon which most physicians base their medication recommendations. It's all confusing, and I have to admit I was ignorant about a lot of this stuff, so over time I have learned a lot. I am also in two Prolia groups - one whose membership is primarily made up of those who have experienced problems. Obviously, people experiencing side effects will be the most vocal. And as always is the case online, you have to sort to those who know what they are talking about, as there is lots of false information on the internet. I strongly recommend that you take your time and get all of the facts before you agree to any medication for osteoporosis.