Post-BMT symptoms & what they meant for you
My husband (31 y/o) recently got a peripheral stem cell transplant for his aplastic anemia, and got discharged to home about a week ago.
Since getting discharged, he’s generally been doing well, but I started noticing some changes in his body recently and I’m wondering what I should anticipate. He’s currently at D28. We just had an outpatient appt yesterday, where he got a magnesium infusion and a Zarxio shot since his neutrophils were < 1.5.
An overview of the changes I noticed in the past day or so:
- Random bruise on his arm
- Temperature seems to be slowly creeping up — usually it’s in the low 98s; yesterday and today it’s been in the high 98s and low 99s
- Sudden episode of nausea and vomiting when sitting down for dinner last night (none since)
- Breathing at rest is more rapid than normal (respiratory rate is 23-24 breaths/min)
Have any of you experienced these symptoms in the first few months after transplant? If so, how did things progress for you?
I know the things to look out for are GVHD and infection — the doctors don’t seem worried about that right now based on what I shared with them, but I’m curious what else these symptoms could be due to.
To that end, I’m curious to understand other folks’ experiences at this stage post transplant — what symptoms you had, what it ended up being, and what the treatment was (if anything). I know things are highly individual, but any insight would be extremely helpful! I just want to be prepared.
Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.
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The first couple of months post SCT are very precarious. The new immune system takes a while to kick in and start functioning fully. I remember having random fevers. You will need to call and let the doctor know, since they need to rule out infection.
I continued taking anti nausea medication for a while as well.
Your husband’s doctors will monitor all the symptoms and look for signs of GVHD. It can be a wild ride the first 4-6 months while recovering from the transplant! Hang in there!
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