My Experience with Evenity

@dbamos1945 I had no side effects from Prolia or Reclast. I had Reclast in September it’s been 4 weeks and nothing so far.
Prolia after one year only showed a minimal gain. I went from -3.3 to -3.2 in my spine. My endocrinologist was wanting me to go on it for 2 years. With the small amount of gain we felt it wasn’t working for me. So moved on to Reclast.

@grammy9

I am prolia now. 2 shots and i am thinking about transitioning to a light dose of reclast to help with rebound. I have taken fosomax, forteo and evenity before prolia.

@gravity3 What is the rebound? Did you have symptoms with Prolia? I have done Fosamax and Evenity so far. Thank you!!!

@lauratys yes sorry jumping in here not familiar with this thread, but my bone specialist, and endocrinologist HOPKINS, is recommending I start 12 months on Evenity to build the most rapidly, and then go on Prolia absolute must once every six months! I have about 4 mile compression fractures and that thoracic spine with scoliosis. 76 yr severe risk now.

Thank you for sharing your information. I just don't know if I want to commit to Prolia at 69 y.o. I will get DEXA early November and see if Actonel has worked after Evenity. My doctor has had success with others using Evenity and then Fosomax or Actonel. I have had no breaks and otherwise healthy and very active. (I only quit downhill skiing a couple years ago due to rotator cuff issues.)

Did you have any special conditions that helped insurance pay for the cost of evenity? I am 67 years old, just diagnosed with Osteoporosis, no other issues. T score of -2.7 on lumbar spine, hips and femur still Osteopenia. My doctor told me insurance would not cover Evenity ( Medicare Advantage) and my cost would be os about 70000 dollars!

@pcretella: I have Original Medicare with Part A&B& drug plan through group & senior suppliment insurance. I never wait for referrals, get all rx my doc prescribes -no problem.
For me I would not change from Original Medicare - the premiums might be more expensive, but my best health care is of primary importance.

@lauratys

I cancelled my appointment for my 10th shots because of debilitating joint and bone pain. My last shots (9th) were approximately 5 weeks ago. I still do not have any relief, I am in constant pain, late night and morning are the worst. I do have arthritis but my orthopedic doctor told me it is not bad enough to cause the extreme pain I am experiencing. I had EMG/NCV tests yesterday and was told there is no damage to my nerves or muscles other than slight neuropathy in my feet. At night and in the morning I am using a walker. I can't drive because of leg pain. After the 9th shots I developed arm, shoulder, and lower back pain. I too was repeatedly told that the pain I was experiencing was not due to Evenity. One of the infusion nurses told me my bone pain was a good sign - "that means it's working" I hope my pain diminishes over time because my health, at this point, is in shambles.

@hammondp2 Would you mind sharing the name of the medication that helps with tendonitis? I hope you are continuing to improve. I refused the 10th shots because of debilitating pain. I'm hoping I'll improve over time. It's been about five weeks since my last shots and still no relief. Best of luck to you on your osteo journey.

@pcretella You might be eligible for financial assistance from Amgen (the manufacturer of Evenity). They have several options available based on what insurance you have and your finances. If you're not eligible for any of their programs, they can direct you to other resources. I would also speak with your pharmacist and also look into state assistance programs. If you used an agent for your insurance, call them. Try calling whoever administers your plan. Since Medicare Advantage open enrollment for 2026 is now available, see what plans will pay for Evenity.

There's a lot out there, so just do the research and don't give up! Best wishes to you moving forward.