← Return to Essential Thrombocythemia: Making treatment decisions

Discussion
Comment receiving replies
Profile picture for vickieannb57 @vickieannb57

Started HU in May 2025 had a few side effects so far none long term. Some days I get really tired around 4:00pm other days not depending on what I do. No hair loss even though my hair has more gray than before. At first my tongue would burn that left after a couple weeks. Skin is dryer sometimes my leg calf burn and feet burn. I read some where that it will cause old skin damage to show up so I am noticing lots more age spots on my army and legs. But none of this is bad. Some of the things leave and return. I also read and Doctor told me be careful in the sun when taking HU because you will burn found that out after 2 days of taking the HU. Oh by they way I am 71 so some of this could be due to my age not sure. Hope this is not to long for you this web sight has been a blessing .
Good Luck

Jump to this post


Replies to "Started HU in May 2025 had a few side effects so far none long term. Some..."

@vickieannb57 interesting what you said about age spots on your legs—me too. Many more in the past 6 months. Please tell me what HU is? Do you try to watch sugar and carbs? Nice to connect with you. Have a nice day.