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My Experience with Evenity
I just finished my 12th set of Evenity injections today. I wanted to share my experience with other people who are considering starting Evenity or are already receiving the injections.
Cost and Ordering
My Medicare Advantage Plan covered most of the cost of the medication, and it was authorized very quickly. My out of pocket cost for all the medication was about $2800. My copayments varied depending on which coverage stage I was in. I used my insurance company’s online pharmacy, and the syringes were shipped to my doctor’s office. I never had to pay for the administration of the medication, which was always done by a medical assistant. I saw my doctor several times during the 12 months. The last visit was to go over what happens next.
Side Effects
I experienced some of the side effects listed on Amgen’s website, although not all at the same time. I reported the side effects to my doctor and to Amgen. The side effects included injection site pain, bone pain, joint pain, muscle pain, eczema-like rashes, and fever. I never considered stopping the treatment due to the side effects. The majority of the side effects that I experienced didn’t last very long after each set of injections- sometimes just a day or two. The eczema-like rashes lasted a couple of months.
After Evenity
The next steps are a bone density scan and Prolia injections which are once every 6 months. I’m not sure how long I will be on Prolia.
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@kristie2 Thank you for your response. I have just heard you can never go off Prolia so that's what really worried me. Did Evenity help you?
@grammy9 yes my DEXA score went from -4.6 to -3.3. While on Evenity. Yes you can go off Prolia you just have to go on another bone med to help with any rebound effects.
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1 Reaction@kristie2 thank you so much!!!
@grammy9
It is not true that you cannot ever stop prolia. It is definitely easier if you hav taken only one or two injections. The rebound effect is not as strong as it would be later. Best idea would be to do your own research. Follow the science.
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1 Reaction@normahorn I just researched the "rebound" effect from some of these medications and Evenity is one that "without immediate use of an antiresorptive after..the patient will experience "a rebound" and not only lose bone density but substantially increase the risk for fracture." From Great Bones-McCormick which he has notated from several others. I appreciate your response as it made me do a bit more research. Unfortunately there are no easy answers and we all respond differently to these meds/protocols. Thx!
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1 Reaction@gravity3 Thank you so much!!! Did you do Prolia?
@lauratys
I think the same can be said for Tymlos and Forteo.
@normahorn That is not true. Prolia and Evenity showed, by far, the worst outcomes one year after stopping treatment.
https://pmc.ncbi.nlm.nih.gov/articles/PMC8519894/
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1 Reaction@kristie2: Thank you for your post on life after Evenity.
Will you share your experience (side effects, etc) on Prolia? And your bodies experiences now on Reclast?
I, like many with Osteoporosis, am exploring the bone gains of Evenity and what drug to choose after the 12months of Evenity!?!
Your input would be valued!
dbamos1945
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1 Reaction@normahorn Yes! You are correct. My doctor wants me to switch to Prolia after I did Evenity and then have been on Actonel for two years. I just don’t know if I want to commit to Prolia forever as I am 69. Getting off Prolia sounds very controversial and tricky. Sequencing path for these drugs is not very clear.
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