Anyone ever request a new oncologist mid-treatment?

Posted by korinja @korinja, May 17 2:59pm

My oncologist was awesome and without a doubt saved my life by getting me into treatment very early after my diagnosis. In the months following, there has been a breakdown in communication, to the point that I feel completely uncomfortable asking any questions related to my illness or treatment. I have also only seen this person one time (all other communication is through the portal, a few phone calls early on, and now just theough the nurse), at my initial consultation. I have no question as to the quality of medical decision-making and treatment I am receiving. I just dread the idea of interacting with this individual to the point that the mere idea makes me need an anxiety med and I need a proxy to communicate on my behalf. I’m at a pause in my chemo pending surgery and wouldn’t have chemo again for 2-3 months, so it seems like this might be a good point in my treatment to request a change. Everyone I’ve asked (non-cancer patients) thinks I’m crazy to even consider it. Thoughts?

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shivey | @shivey | Oct 16 5:27pm

I’m so sorry you are going through this and personally I would change oncologists as it’s important to have a good relationship with the oncologist. Just think it’s your life whereas you are just a patient to him.. best wishes

cookercooker | @cookercooker | Oct 17 8:30am

I requested a change in oncologists, but there weren't any who specialized in gynecological cancer. After his treatment with carb/pac didn't work I was switched to another oncologist who was conducting a clinical trial (not a the same clinic). So that was a relief. Like you, I felt uncomfortable with the first doctor. He would call me "trouble", like, "hello trouble", which he thought was a joke. I could see that I frustrated him with my questions and comments. One time he just walked out on me, never to return.
If I were you, I'd change doctors if there is one. Nurses have a bead on doctors and may be able/willing to tell you which doc. to consult.