I have cysts and lesions all the way up and down my spine. Have had MGUS for years but was told MM is not the cause. Osteoarthritis there, for sure. Lots of rib and back pain, especially at night. "Stable" blood results. Mom died of MM but was told condition is, likely, NOT hereditary. After 2 bone marrow biopsies which didn't show high volume of plasma cells, and everything blamed on OA, I'm "just" trying to live with the annoying pain and yearly MGUS monitoring. Not easy, for sure, but not sure I can do much else. Tried to get into MAYO, as my husband has excellent care from his nephrologist in Rochester when we need her help but I was turned down, sadly. The opinion from NIH years ago that they gave me as well as the scans they ran, AND their bisphosphonate suggestions have helped me get from year to year, waiting for MGUS results. Not easy but support from everyone on forums like these helps too. We need each other, offering words of love and encouragement, not to mention shared knowledge, experience and information.

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