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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: Nov 1 2:25pm | Replies (164)Comment receiving replies
You've conveyed so much useful information! That's especially helpful because most of us had ever even heard of ET prior to our diagnosis.
I have just one comment to add to your excellent posts. Fatigue is the most commonly reported symptom of ET, because our bodies burn lots of energy over-producing platelets. When you say "I tired more easily," this may be why.
If you do reach a point where your oncologist suggests HU, you may start feeling stronger as that over-production is suppressed.
That's been my experience, and why I now consider HU, the scary chemo drug, my friend.
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@janemc
Thank you for your kind words and reassurances as always.
My tiredness really isn't much of a problem so far, thankfully. I can still take long walks, climb stairs, play with my dog-child outside, and do about anything I want to do. I don't vacuum the whole house without stopping a bit, but I usually let my Wyze robot "Hazel" do most of the vacuuming anyway. That's why I think it might not be my ET causing it, but who knows? At 78 most people likely tire more easily, I'd guess.
Also, my platelets have never been super-high (yet). 581k has been the highest so far and they are down a little from that recently. Only diagnosed April of this year. I may not have had time to have real symptoms from ET yet!
I know others do have symptoms from ET and/or HU, of course.
Again, thanks to all who participate here.