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Is anyone suffering with Anti MAG neuropathy?

Autoimmune Diseases | Last Active: Oct 17 10:03am | Replies (8)
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Profile picture for laporta @laporta

Hello, I just joined this site. In March of '23, I was diagnosed with idiopathic peripheral neuropathy, then, it was changed to CIDP, and then, a couple months ago to anti-MAG. So, yes, I am a member of this exclusive club (approximately 1 verifiable case out of every 100K people, or a little over 3K in the U.S.). Let me know if I can provide any data or feedback based on my own experience. I am extremely pro-active in taking this head on. Best regards, Steve.

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Replies to "Hello, I just joined this site. In March of '23, I was diagnosed with idiopathic peripheral..."
John, Volunteer Mentor | @johnbishop | Oct 16 6:30pm

Welcome Steve @laporta, Thanks for joining the Connect community and sharing your experience. I'm one of the fortunate ones with only numbness and a little tingling with my idiopathic small fiber peripheral neuropathy. It really helps to learn as much as we can about our conditions and what treatments are available that might provide some relief so it's great to hear you are pro-active and diving into the mix. In case you haven't tried the search function on Connect it's really pretty good at locating others with similar symptoms and conditions. Here's what search shows for "anti mag" - https://connect.mayoclinic.org/search/discussions/.

In case you haven't already seen the Foundation for Peripheral Neuropathy site, it's a great source of information - https://www.foundationforpn.org/. They also have a lot of their webinars stored on their YouTube channel including some with anti MAG information - https://www.youtube.com/@foundationforperipheralneu4122/search.

Have you found any helpful resources?

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