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← Return to Prolia treatment for osteoporosis: What is your experience?
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Prolia treatment for osteoporosis: What is your experience?
Osteoporosis & Bone Health | Last Active: Jul 13 3:27pm | Replies (1246)Comment receiving replies
I am new to this feed, I hope it’s ok to post/ask. I had a treatment of Reclast last year due to multiple compression fractures and scores of -1.9, I’m 44. This year I’m at -2.4 which is an almost 8% decrease with reclast. I honestly don’t have much faith in my endocrinologist. She’s very overworked and very short tempered. Unless I fly somewhere she’s my only option. I’m also currently dealing with cancer in my nasal cavity. My last conversation with her was basically short and left me crying. She said she didn’t think either drug Forteo or Prolia would be a problem with what’s happening in my nose, and she didn’t care which one I choose I just had to pick. Now I will say when I had the reclast I ended up in the hospital for two days on fluids and pain meds as it was terrible and very scary. She said it must be something else causing it because reclast doesn’t do that. I’m sorry for such a long post. I just feel lost. I really want a second opinion, I’m just don’t know where to go. I had to edit, as I realized I didn’t really ask a question. So basically has anyone had cancer and used either medication? Thank you in advance!
Replies to "I am new to this feed, I hope it’s ok to post/ask. I had a treatment..."
You definitely need a second opinion. If a endocrinologist is not easily available, I would make an appointment with another type of medical doctor and get their opinion. It sounds like you have lost confidence in your endocrinologist and it is important that one can trust and talk to whoever is managing your healthcare. I have had osteoporosis for many years and I see a doctor of internal medicine. I took oral medicine for over five years with little improvement in my numbers, and some disturbing side-effects. It has now been over five years since I made decision to stop taking osteoporosis drugs and I might add, I refuse tests to even check my numbers as I have no intention at this time of taking them again! I've felt much better the last five years since going off the meds. I eat a diet for good bone health, exercise, and watchful that I don't do activities that might compromise my bones. My bone health may or may not have improved, but I absolutely will not go back on meds again until there are "proven" better drugs on the market. I don't know how much pain or disability you have due to your osteoporosis, but if it isn't a huge problem, maybe stepping back from the osteoporosis meds for awhile and concentrating only on the treatment for your cancer would be something you could consider. Wishing you the very best, and also my prayers.
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There has got to be a better endocrinologist for you! I live in CT and just found out that Yale has a bone center so I’m setting up a consult. Maybe look at the good hospitals in your area and get a referral. You shouldn’t be reduced to tears. You should be hopeful after a visit. Best of luck