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Anyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 13 8:16pm | Replies (899)Comment receiving replies
I been on it since May 2025.. but my HOCM was just diagnosed in April 2025. I feel better than without it. It was helpful but I need a septal myectomy. It is a personal choice, do research, write.qiwsrions down and discuss questions with cardiologist. ask what are other options and make the decision that best suits you and your needs.
Replies to "I been on it since May 2025.. but my HOCM was just diagnosed in April 2025...."
@bocellibonjovi71 If you don’t mind me asking, what does your septum measure?
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Hello @bocellibonjovi71, it looks like this is your first post here on Connect, so Welcome!
That is pretty sound advice you have given to others. It sounds like you have progressed quickly and Camzyos did not help you beyond feeling better than without it.
As you suggested, doing research and asking questions and learning all you can about HOCM is all good...but making certain you are at a COE (Center of Excellence) is also of great importance.
This surgery is so precise, that your surgeon needs to be an expert.
Have you done your research? May I ask where your septal myectomy will be performed?