Scared of Abaloparatide injection
My rheumatologist wants me to take the Abaloparatide injection ( Tymlos) but I’m terrified of the side effects. Has anyone used these daily injections so I can decide whether to try them or not.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
@drsuefowler Interesting. My brief research says that the Mannitol in Forteo is inactive and helps to stabilize the drug, vs. Mannitol that would be injected to act as a diuretic. Not sure what to think. I haven't had any issues with Tymlos, but certainly people need to know what they're taking.
@mandie4712
I just started Tymlos 15 days ago, after doing research on most of the available osteoporosis meds. All of the meds have some side effects, including jaw bone necrosis for Fosomax and Prolia, and stroke or cardio potential with Evenity. Tymlos makes me a bit lightheaded after I inject but it doesn't last for long. It also seems to cause some increased sensitivity to body areas that already have problems. E.g., I have neuropathy in my toes, so now the toes are a bit sore where previously just numb. My hands are sore, especially my thumbs which was a prior symptom but since using Tymlos a bit more sore. Could be from working out with 2 lb hand weights. Meds alone are not the answer but light weights and tension bands are an added plus. Also taking supplements -- calcium, magnesium and vitamin D3/K2. I am a former marathon runner and active all of my life, but have chronic pancreatitis and cannot use the tablets and must inject. The side effects so far are pretty minimal for me. I do get up during the night for the bathroom, sometimes twice, but that is due to the amount of water I drink and pre-existed Tymlos injections. The bathroom frequency has not increased.
I need to start Teriparatide injection but I’m really scared of the side effects. I’m disabled and cannot walk at all. I heard this injection can cause you to need the toilet several times after taking the injection. I can’t get out of bed b6 myself. I am so confused 8 don’t know what to do.
Hi @mandie4712, I combined your new discussion on being scared of starting your osteoporosis medication with your existing discussion:
"Scared of Abaloparatide injection"
- https://connect.mayoclinic.org/discussion/scared-of-abaloparatide-injection/
Here, you can reconnect with members who shared their experiences and will see your newest post.
The only thing I can find is that Forteo might increase the amount of calcium in your blood, which can cause more frequent urination (and possibly cause kidney stones.) That's a MAYBE, though. If you are going to take Forteo, the doctor is supposed to give you blood tests to monitor all this.
Have you discussed other medications with your doctor, like Prolia? Maybe it would be better/easier for someone in your situation?
@njx58
I’m now going to be put on teriparatide think the side effects are pretty much the same to be honest.
@mandie4712 See what happens. No sense worrying about possible side effects until it happens. One day at a time!