← Return to Severe Iron Overload caused by too many IV Iron infusions

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Profile picture for janetlen @janetlen

@guyjeff123 Jeff: I would be very disappointed with Mayo as well. If you keep your current Oncologist, you need to have a discussion with him about why he never tested your Ferritin level. Otherwise, if it were me, I'd be making the 90 minute drive to see a different Oncologist. I think it is a miracle that the ferritin has dropped to near normal levels. How is your anemia at this time?

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Replies to "@guyjeff123 Jeff: I would be very disappointed with Mayo as well. If you keep your current..."

@janetlen I may have confused you and possibly others. It wasn't my Oncologist that I have seen for the last 3 years. I was referred to another Cancer Center for IV Iron Infusions for Anemia. They are unaffiliated. The Oncologist/Hematologist at the Cancer Center of North Dakota, Dr. Anil Potti, is the doctor who gave me all those IV Iron Infusions without checking my ferritin levels. This is a small town of about 50,000 people. Most of my doctors work at Altru Hospital and it's affiliates. Dr. Potti did not. I can't even remember why I went out of network to see him for these infusions, my memory has gotten worse over the 3 1/2 years since I first saw Dr. Potti. Being a small town is nice, but every doctor seems to know every other doctor. I do know that my Oncologist I see frequently is a good friend of Dr. Potti's. Which makes me question everything he does or says, including why he did nothing to address the iron overload for over a year and a half. During my last visit with Dr. Panico, not Dr. Potti, I asked him to his face, " When you realized you and Altru Hospital could no longer do anything to help me, why didn't you refer me to MAYO a year and a half ago. He had no answer. It was at that visit that I had to ask him to refer me to MAYO, to which he replied, Oh, would you like me to refer you to Mayo. To which I replied YES, and I shouldn't have had to ask you now nor over a year ago. I hope that clears things up. Thank you for caring.