1. < Autoimmune Diseases
Profile picture for haileyrose

Erythromelalgia treatment and autoimmune

Posted by haileyrose @haileyrose, Apr 28, 2024

Hi all,

I (31, F) have been experiencing Erythromelalgia for about 1.5 years. I was diagnosed officially about 6 months ago.
-Asprin didn’t help
-Magnesium does seem to help.
-I have symptoms the worst in my hands, then feet, and also at times get redness on my face and ears as well.

I’ve had various other random symptoms over the last 10 years which lean towards being possibly autoimmune related. Because of this, I recently was referred to a rheumatologist who flat out denied that Erythromelalgia is related to or coincides with autoimmune conditions. I was flabbergasted by this.

So now I’m at square one, and am receiving no treatment for my EM. Any insights or suggestions? I feel stuck and frustrated.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Profile picture for piemonte
piemonte | @piemonte | Oct 12 8:09am
In reply to @piemonte "Two remedies that have helped me deal with the burning. I rub Biofreeze cream on my..." + (show)
Profile picture for piemonte @piemonte

Two remedies that have helped me deal with the burning. I rub Biofreeze cream on my feet before I go out to run errands. Biofreeze helps with the burning.

I keep a dampened dish towel in a plastic bowl on my bedside table. If my feet start to get hot, I wrap my feet in the cool damp towel.

I also use a mister to wet my feet if I’m reading or watching TV.

Jump to this post

@piemonte I forgot to mention that I never sleep under the bed covers. I sleep on top of the bed covers under a fleece blanket. My feet are exposed so they don’t get hot.

I looked at my Biofreeze tube. It’s actually a gel. I hope this is helpful.

REPLY
Profile picture for sharshy
sharshy | @sharshy | Oct 14 2:11am

What is the best antidepressant for Restless legs and Erythromialagia?

REPLY
Profile picture for piemonte
piemonte | @piemonte | Oct 14 8:05am

My rheumatologist said some people with erythromalagia have benefited from taking the antidepressant, Cymbalta. Unfortunately I cannot take Cymbalta because of interactions with other drugs I’m taking.

REPLY
Profile picture for raebaby
raebaby | @raebaby | Oct 15 3:47pm

For 20 years I thought I had erythromalalgia. I had sores on my toes and couldn't cover up my feet in the winter. It later turned out that it was chilblaines. My feet couldn't adjust to changing temperatures. I had one dose of Nephedipine, that is also for my high BP, and Inever ha a problem again.

REPLY
2 replies
Profile picture for piemonte
piemonte | @piemonte | Oct 15 4:33pm
In reply to @raebaby "For 20 years I thought I had erythromalalgia. I had sores on my toes and couldn't..." + (show)
Profile picture for raebaby @raebaby

For 20 years I thought I had erythromalalgia. I had sores on my toes and couldn't cover up my feet in the winter. It later turned out that it was chilblaines. My feet couldn't adjust to changing temperatures. I had one dose of Nephedipine, that is also for my high BP, and Inever ha a problem again.

Jump to this post

@raebaby thank you! I will certainly look into this.

REPLY
Profile picture for raebaby
raebaby | @raebaby | Oct 15 6:23pm
In reply to @raebaby "For 20 years I thought I had erythromalalgia. I had sores on my toes and couldn't..." + (show)
Profile picture for raebaby @raebaby

For 20 years I thought I had erythromalalgia. I had sores on my toes and couldn't cover up my feet in the winter. It later turned out that it was chilblaines. My feet couldn't adjust to changing temperatures. I had one dose of Nephedipine, that is also for my high BP, and Inever ha a problem again.

Jump to this post

@raebaby I still takeNephidpine every day; it juststopped the symptoms with the first dose.

REPLY
View MoreView Less
Please sign in or register to post a reply.