← Return to Prolia treatment for osteoporosis

Veruska (@veriska)

Prolia treatment for osteoporosis

Bones, Joints & Muscles | Last Active: May 14 5:24am | Replies (1017)

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I am tentative about this drug also. I have hashimoto's disease, gastroparesis, kidney disease that is not active, and osteoporosis. My last DEXA scan was -4.5 at the hip and -2.5 at the spine. After a year and a half of resistance training twice a week for an hour each with a Wellness Coach and by a physical therapist, my spine is now not losing any bone but my hip has lost 5% in 2 years. I have been taking 2000 Vit D3, adequate calcium since I have calcification in my arteries (I am 68 years old), along with Vit K2, and magnesium and a multiple vitamin. My hesitation is that 3 totally different drugs have sent me to cardiac care for 5 days or more with blood pressure over 200. Acthar, Livalo (a cholesterol med) and Tacrolimus. At all times I had just visited my nephrologist & my kidneys were fine in that I was not dumping protein. I have always had excellent creatinine clearance… just protein loss. I am not able to take any of the Fosamax or pills such as that. They make me dump more protein. Unless someone can steer me to someone that can do some genetic counseling to see why my body is not metabolizing drugs like everyone else's, I am not inclined to take Prolia. I don't know where to turn for more help. My endocrinologist just keeps pushing Prolia. But at least I have built muscle to support these old bones until they just break. Any advice would be helpful.

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Replies to "I am tentative about this drug also. I have hashimoto's disease, gastroparesis, kidney disease that is..."

Mayo does gene testing and genetic counseling to help find the right medication for a particular person.

Do you know what department I would contact? Do I need a doctor's referral?

I won't take Prolia due to it stating that stopping the injections can cause spinal fractures. My pharmacist confirmed this with the manufacturer, although the endocrinologist believes otherwise. . The other problem is that having low bone density doesn't correlate to bone strength. I have osteoporosis, but have never broken a bone, even when falling. My friend doesn't have osteoporosis, but has broken bones when falling. Unfortunately, there is not enough known about this disease and we are all guinea pigs. The medical profession is constantly changing their minds about treatments that were once mainstream. That is not necessarily a bad thing; it just means one should do some research and not blindly trust their doctor.

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