@rivieramaya2009
Hello I am glad you responded to my post , since I texted last , I was doing well for two weeks on
200 mgs of OJJAARA ! Suddenly I became very sick to my stomach and no medication help the nausea!! Could not keep anything down ! Stopped taking OJJAARA, for few days, then developed bad diarrhea! Was sick for six days ! Went to urgent care they tested me for everything under the sun !
All came back NEGATIVE!
As soon as I felt , I restarted lower dose 150 mgs of OJJAARA! It’s only been three days so I PRAY 🙏
I STAY GOOD ON THIS LOWER DOSE ! GOD KNOW I NEED THIS TO IMPROVE MY BLOOD 🩸 NUMBERS WHICH ARE EXTREMELY LOW , Below the minimum!
I HAD PV FOR MANY YEARS AND WAS GIVEN ALL REGULAR DRUGS TO STOP MY BONE MARROW FROM PRODUCING!!
I think HU AND JAKAFI ! Both brought my numbers
I was shocked when I was low below range ! I guess I should have paid closer attention to monthly blood tests! I left it to my doctor
As it was ! I noticed how depleted I was and told the doctor I was cutting dose by half ! But by then , the numbers did not get better!
Now struggling to increase all my blood numbers ! I FEEL GOOD THAT I MAY IMPROVE WITH OJJAARA
ALSO UNCERTAIN OF MY FUTURE!
I hope to hear from you
Stay strong and positive