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Essential Thrombocythemia: Making treatment decisions
Blood Cancers & Disorders | Last Active: 2 days ago | Replies (323)Comment receiving replies
I was diagnosed with ET in 1992 and took it for about 5 years. I had no problem with it. Doctor switched my medication to agrylin (sp) because it was supposed to be less harmful. It gave me flu symptoms. I chose to stop taking both meds. For some reason, my platelets stayed around 3000-4,000 up until April 2025. I was just diagnosed with Myelofibrosis and am positive my DNA changed due to high stress for 5 years. I can’t get over the fact, I did this to myself. Wishing you the very best. I wish I could go back 5 years! BTW my platelets when diagnosed were 1,500,000.
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@rivieramaya2009 No one wants to be sick. This is not your fault! You are in good company here, so rest assured no one here blames you for anything. We support your journey because we are on the same road!
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@rivieramaya2009 It makes me really sad when I hear people blaming themselves for being sick with these diseases. Please don't beat yourself up. We cannot control all the stress that life hands us or whatever in our make up makes us prone to these genetic mutations. And we have to rely on docs for advice on treatment, and sometimes that's hit or miss. You deserve to do something really nice for yourself today. Report back what you did so we can all try it!