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Small Nerve Fiber Neuropathy (Idiopathic) EYE ISSUES
Brain & Nervous System | Last Active: Oct 26, 2025 | Replies (26)Comment receiving replies
@rnlorena I am glad you were able to get the answers you needed. I thought that was the case given what I was reading about on the NIH website. I live in Missouri and have unknowingly had nld-sfn since childhood. The science has come a long way since long covid has increased the number of individuals diagnosed with sfn. Your story is so beneficial to so many and I appreciate it. I just wanted to add my situation to it do to the length of time I have been dealing with it along with the possibility it could be linked to sfn. I would like to add that in my situation it is the visual acuity that is the problem. When in an eye exam, I am tested and it shows that my eyes utilize a certain power of contact.... but when I get home and wear them, I have trouble seeing. I have also had dry eye along with dry mouth and I can only wear daily contacts, so this removes the possibility of protein buildup on them. I have been my own advocate as well and understand the difficulty finding medical professionals that have knowledge of this. I was doing research when I came across your post and again, I am grateful to you for posting your dilemma and conclusion. I just want anyone going through something similar to understand that it may not be a life-threatening situation since I have been dealing with it for a very long time and it could be due to sfn. The NIH does have articles published as recently as 2020 that talk about the link between sfn and eye problems so anyone who is in need of proven scientific data can start there. Thank you for sharing.
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@fluegelb I haven’t gotten on Mayo as much as I did before. Sorry I am now just answering this. After I had the head pressure and blurry vision in February the next month it was the eye thing. I was sitting watching TV and I noticed a feeling come before my right eye. Not long after that it came before my left eye. Then it surrounded my eyes. It wasn’t painful but it took me awhile to figure out a term for the feeling. It was subtle. So I have dry eyes. I also appreciate the information about SNF and Covid. It was strange that I woke up and had full onset of pinpricks head to toe and in my eyes going off 24/7. I was in the 5-6 week time frame for having a reaction. Alpha Lipoic acid has worked for me. I still get pricks
Just not 24/7 Thank goodness. Now having said that I now have Occipital Neuralgia which can be caused by SNF. I got diagnosed in August. I started on Gabapentin and after a short while I thought okay this is working. I have noticed that I am getting breakthrough head pressure. It causes my blood pressure to go up. I have an appt. on December 1 to see a Neuro-Opthalmologist then. She is about an hour or so away from me. My goal is to find out if I could get surgery for this. They cut the nerves. I know how picky they are about surgery If there is anyone out there that has had surgery due to occipital neuralgia I would love to hear about it. I do have stuff going on in my neck that I thought was causing this. An Orthopedist asked me if I had pain going down my arms and I said no. Well unless you have that I can’t help you. When I went to Texas I saw a neurologist and I asked him a question that I didn’t want to ask. It was this: Can I have Head Pressure and Blurry Vision again. His answer: Yes. When I went to Doctors where I live nobody could help me not even my neurologist. I say this to anyone who has issues and seeks help but doesn’t get help. Don’t give up. Advocate for yourself. Believe me I know it isn’t easy. I do know how frustrated I was. @rnlorena