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@tgsenn70

Greetings! I went through the PRRT in early 2024. It involved 4 sessions over 8 months. The first session began at 7:30 AM and I was released at 3:00 PM, so it took all day for the infusion. The remaining 3 sessions were the same. I was told that I could not ride in the same vehicle with anyone so I drove solo to and from the treatment center. Definitely take along a good book or something to occupy your time, including food for lunch. I was told I could not sleep in the same bed as my spouse, nor could I use the same bathroom. This lasted for 5-7 days but I went 8 days to prevent exposure. I couldn’t be within 6 feet of anyone for this time as well. The results were successful for at least a while, up to now anyway. I was a bit tired for a day or two with each infusion. I have been receiving Lanreotide injections monthly for about two years. Initially, I received Octreotide injections monthly. It will be 6 years in January since I was diagnosed. I am 67 and very active so I’m very positive that I’ll be around for a while longer. Early on in treatment I was advised that being overweight was a risk factor, so I purposefully lost 46 pounds and feel better for doing so. I wish you the very best in this journey…. Ron

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Replies to "@tgsenn70 Greetings! I went through the PRRT in early 2024. It involved 4 sessions over 8..."

@rschweer thank you for sharing!! I wish you the best on your continued journey.

Hello @rschweer and welcome to Mayo Clinic Connect. I appreciate you posting about your NETs journey. Your post provided the needed information about PRRT, but it also provided a glimpse into NETs treatment as well as your positive attitude.

Your six years of treatment seemed to have served you well. It is great that you have remained active. Losing 46 pounds was quite the accomplishment. Did you find it challenging to lose that much weight? How long did it take you to accomplish that goal?