Prostatectomy Question? Side effects outweigh benefits?
My doctors told me they no longer due Prostatectomies as the side effects far outweigh the benefits !! But I see many of you are ??? And some are still getting them done at the Mayo Clinic and other Medical Centers !!!
So who is right and who is wrong here ???
I had 44 external beam radiation treatments!!
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Most of the men who chose radical prostatectomy that I've met or read about say the same thing " I just wanted it out". If you watch Dr Mark Scholz videos on radiation vs. surgery he will tell you he personally believe radiation is as effective as surgery and does not recommend surgery very often.
I chose radiation + ADT and the side effects have been minimal. Both treatments typically result in dry ejaculations forever but there is a much higher chance of impotence and incontinence with surgery vs. radiation
Decide what is best for you and find the best surgeon or RO to provide the treatment. I recommend using a multi-discipline university "center of excellence" vs. private MDs
@spino
I agree 100%. I was shocked to read it since RP was and still is a "gold standard" for PC . That doctor is blatantly lying to his patient - unbelievable ...
As somebody already mentioned before, no scan in the world can see what can be seen during surgery and also after gland is out and examined in detail under the microscope.
If my husband chose radiation he would have been treated for 4+3 PC while in reality he had 4+5 gleason that was discovered after RP. Also, if patient has cribriform glands or IDC pathology , those features sometimes evade radiation treatment. After radiation it is very, VERY hard to remove a gland and very few surgeons know or want to do it, and one can not irradiate the same spot twice !
My husband wanted to have option of RT if he ever has BCR and we are very happy that he chose RP as a first line of defense.
BTW - both RO and surgeon suggested RP as a best approach for my husband's case.
@surftohealth88 I would not want to accuse a professional of lying, but I have certainly encountered professionals who had a very high level of confidence in their own opinions.
I'm glad that the professionals with whom you consulted agreed, as that always makes the decision easier--unless you personally disagree.
When I had to make my decision, I found it hard to accept the direction I was receiving, even though I had no expertise to disagree.
[Wait a minute--I'm talking about when my PSA first came back at 10.8. My primary care MD agreed to wait and retest in a month. I don't think that was for him!]
I am 55 and in otherwise good health with Gleason 4+3 and I will be undergoing retropubic robotic assisted radical prostatectomy in 2 weeks at MD Anderson. My decision was based on advice from both the surgeon and the radiation oncologist at MDA who BOTH recommended we go this route. It is a toss up over 5 and 10 years and if I was older, they may have recommended radiation, but the decision for me was that if it does come back in 10 or even 20 years, we still have radiation 'in the back pocket' should it reappear. This is a very personal decision and neither was right or wrong, but I am hopeful that the incontinence and ED are temporary and radiation can have long-term side effects as well. My decision was based on advice of doctors - including second opinions, talking with people like me that have gone through this, this forum and a book called "Surviving Prostate Cancer" by Dr. Patrick Walsh which I highly recommend. Good luck and God bless.
@rlpostrp thanks for you explanation. honestly until your description i never looked closely at my pathology report. i spoke with my doc who told me it couldn't have gone better (DaVinci) and that the pathology showed no margins and tumor less than 10%. after viewing the report my staging was :
PATHOLOGIC STAGE CLASSIFICATION (pTNM, AJCC 8th Edition):
pT Category: pT2: Organ confined
pN Category: pN0: No positive region
al nodes
pM Category: Not applicable - pM cannot be determined from submitted
specimen(s)
Which is interesting because they staged me at 3 before I went on my trial drugs (pre-surgery) so I assume that staging was done from my MRI, PSMA Pet scan, and my biopsy which was gleason 9. the trial drugs (lupron and olaparib) greatly reduced my cancer which was seen on the pathology report (vs the mri and pet scans).