Replies to @loribmt I started Danziten (half dose) last week. So far no severe side effects, just a…

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Blood Cancers & Disorders | Last Active: 20 hours ago | Replies (12)

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@mjbulte

@loribmt
I started Danziten (half dose) last week. So far no severe side effects, just a bit more fatigue than normal and inflammation if I eat sugar. Blood work to be done soon and that should show how well, or not, this medication is working. So far, I haven’t heard from anyone who is taking Danziten. I’m feeling like a guinea pig!

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Replies to "@loribmt I started Danziten (half dose) last week. So far no severe side effects, just a..."

Lori, Volunteer Mentor | @loribmt | 20 hours ago

@mjbulte I was looking for an emoji of a guinea pig. 🐹☺️
Even though the Danziten you’re taking is relatively new there’s the reassurance that its foundation is an effective drug that was approved by the FDA in 2007 (nilotinib/Tasigna). Just modified so that you don’t have to fast before taking.
Reading the info on both drugs I can see why there would a push to redesign it. Having to fast 2 hours before and 1 hour after taking Tasinga (every 12 hours) would get pretty old leaving it a challenging schedule to adhere to.

Your comment about sugar and inflammation is really interesting. I’ve found the same thing too. I tend to stay away from any excess sugars and starchy foods. But if I have a moment of indiscretion…oops! 😅 I seem to pay for that with not feeling my usual perky self the next day. Our diets really do make a difference. Ho hum…but sometimes I just need to indulge in dark chocolate…

Will you let me know how your labs turn out?

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