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I appreciate the dilemma that you are having. As a physician, do you treat yourself or do you see a rheumatologist?
I was working as a nurse when I was diagnosed with PMR at the age of 52. I didn't retire until I was 62. I shared everything regarding prednisone and my medical problems with my nursing coworkers. The more I shared the more support and understanding I received. I was a private person so sharing my medical problems didn't come easy for me. Overall, my medical problems made me a better nurse. We need a doctor's perspective on this forum so feel free to share everything.
My nursing coworkers worried more about my Prednisone use and frequently asked me how much prednisone I was taking. It was odd ... but nobody knew much about PMR but they all knew about the adverse effects from Prednisone.
The medical input I received from my doctors was also indispensable.
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@dadcue - thank you so much for responding! I do see a rheumatologist and I did let my staff know I was on prednisone and to beware. It is a rare condition and many of my colleagues in primary care have only had a few patients with it in their career. Maybe it’s under diagnosed. Agree that going through illness like this makes me a better PCP. It’s hard because I can still walk and talk and look fine on the outside so I don’t think people get it unless they have had it. Appreciate everyone so much! Thank you!!!