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DiscussionI have a neuroendocrine tumour in the small bowel and liver lesions
Neuroendocrine Tumors (NETs) | Last Active: 1 hour ago | Replies (31)Comment receiving replies
Replies to "@hopeful33250 thank you! I will do that."
@tgsenn70
My wife had 3 cycles of PRRT that turned out very good for her with significant improvement in the size of the tumors in her case. Her primary was on the pancreas, and previously was unoperable, but the the between CAP/TEM chemo, and PRRT she was able to have surgery and move forward in her fight against NET. To answer your questions, the facility that is doing the PRRT treatment, should be providing documentation and coaching for all of your questions. I can remember some of the restrictions at home, different beds, different bathrooms, washing bedding frequently, keeping our distance from each other at home the first week after treatment. Besides the documentation your facility has, I'm sure you can finds alot of information online also. Let us know how us we can help provide any feedback, as we are all on the same team. You got this!