← Return to Small Nerve Fiber Neuropathy (Idiopathic) EYE ISSUES

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Profile picture for fluegelb @fluegelb

I am having vision problems in one of my eyes as well...and it has been like that for 4 years now. You are not alone. I have not been able to determine the cause either. I am more inclined to believe mine stems from my nld-sfn with autonomic dysfunction. In my situation finding a medical professional to treat my condition long term is the hurdle I have to cross. I am fairly certain in my case that my autonomic dysfunction is the root cause but getting specific testing becomes a hurdle when you can't find anyone to help with care after. I would suggest reading some of the latest NIH papers published. They have done some on small fiber neuropathy and eye disorders. Since covid, more studies have been done on small fiber neuropathy. Just a suggestion.

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Replies to "I am having vision problems in one of my eyes as well...and it has been like..."

@fluegelb
Thank you for your reply but I did finally get help. I was diagnosed with Small Nerve Fiber Neuropathy non length dependent in 2021. I woke up two days after I retired and I had pin pricks from head to toe and in my eyes going off 24/7. It took three months to see a neurologist and I finally got diagnosed. I live in the panhandle of Florida but I spent 6 months here looking for help with the head pressure that I had daily and got absolutely no where. I finally advocated for myself. This is what I did. I had family that lived in Houston and I have been there many times to visit. My sister told me about the Hospitals and the Doctors that they had. So I started looking at Doctors in Houston. I went to my neurologist that diagnosed me with Small Nerve Fiber Neuropathy and he didn't help me at all. I looked at Neurologists in Houston and I was surprised to see a Neuro-Opthalmologist. I had never heard of that. I was having head pressure every day not a headache. And I also had intermittent head pains. Then I noticed a weird feeling come near my right eye and It took me a bit to come up with a term for it. I called it a subtle feeling. Then a bit later it came near my left eye. Then it was surrounding my eyes. I gave up looking here where I lived and when I looked at Houston I found two Doctors. I saw a Neurologist who specialized in headaches so I got an appt with him. I next found the Neuro-Opthalmologist and I actually told the office person how much I needed to see this Dr. ASAP. I went to Houston and I was out shopping with my brother and I got a call and I saw the Neurologist in the am and the Neuro-Opthalmologist in the afternoon. Boy was she great. She diagnosed me with Occipital Neuralgia and I have dry eyes. I looked it up and the Small Nerve Fiber can cause Occipital Neuralgia. @fluegelb I will make a suggestion to you. I don't know where you live but I would suggest trying a Neuro-Opthalmologist. You can always tell them your diagnosis and see if they can help you. I know they have one in Mobile Alabama and I got an appt. with her December 1st. I did drive 1100 miles round trip to Houston but I have done it many times to visit with my siblings. So it was no big deal and it was so worth every mile. I will tell you that what I had did a number on me when I couldn't get help. It took me awhile to come back from the months I spent trying to find out what was wrong with me. I sincerely hope you find someone to help you. If you get help I would sure love to hear how you made out. @rnlorena

Hello there !..You don't mind me asking, but are you male or female ?..
What seems to be the problem with the eye exactly. What kind of feeling or sensations do you experience with this condition or sickness, if I may call it like this.