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Profile picture for Suppiskey2surv @suppiskey2surv

@jdm02

I've been at an MGUS stage for about 15 years now. My mother died from MM at my age (67), in 1985. Was diagnosed in late 1983. I get my blood drawn every year to monitor things but was told by THE MM guy at the NIH years ago that he didn't think my MGUS would ever progress to active MM. Still, I wonder about the possibility every year around this time. I'm IgG kappa. Do you know if you've been classified as smoldering MM, kappa or lamda dominant? Have you had a bone marrow test to see if you have a high plasma cell count?

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Replies to "@jdm02 I've been at an MGUS stage for about 15 years now. My mother died from..."

@suppiskey2surv the lab detected 1 lone lamda. I understand this to be a lesser prognosis than kappa. However all my light chain results are in normal ranges.
My M-spike was .13 upon my dx. last May is decreased to .08. New results in Nov.
If I could ask any of you reading this: My 1st complaint for having MGUS (if that is the cause) I have had a lot of trouble sleeping. I’ve been using Melatonin & it has helped but the problem is definitely there for me. Any of you?

@suppiskey2surv the lab detected 1 lone lamda. I understand this to be a lesser prognosis than kappa. However all my light chain results are in normal ranges.
My M-spike was .13 upon my dx. last May is decreased to .08. New results in Nov.
If I could ask any of you reading this: My 1st complaint for having MGUS (if that is the cause) I have had a lot of trouble sleeping. I’ve been using Melatonin & it has helped but the problem is definitely there for me. Any of you?
No plasma or bone biopsy or bone x rays as of yet. If my blood results significantly change then I would need to have these done. Bone biopsy is not fun from what I understand.