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I have a neuroendocrine tumour in the small bowel and liver lesions
Neuroendocrine Tumors (NETs) | Last Active: 35 minutes ago | Replies (33)Comment receiving replies
My husband has stage 4 also. Began in small intestine and spread to liver. We are waiting for insurance approval to start PRRT soon. I am wondering about maneuvering through the days after the treatment. The facility he will receive them at is about three hours away, so we will have to figure out travel arrangements. We’ve been told he will need to be isolated due to potential radiation exposure and he needs to have his own bathroom. Can anyone offer any advice, tips for cleaning and sanitizing, just protection in general? There is no question we want him to have the treatment.
Very sincerely,
Tonya
Replies to "My husband has stage 4 also. Began in small intestine and spread to liver. We are..."
Greetings! I went through the PRRT in early 2024. It involved 4 sessions over 8 months. The first session began at 7:30 AM and I was released at 3:00 PM, so it took all day for the infusion. The remaining 3 sessions were the same. I was told that I could not ride in the same vehicle with anyone so I drove solo to and from the treatment center. Definitely take along a good book or something to occupy your time, including food for lunch. I was told I could not sleep in the same bed as my spouse, nor could I use the same bathroom. This lasted for 5-7 days but I went 8 days to prevent exposure. I couldn’t be within 6 feet of anyone for this time as well. The results were successful for at least a while, up to now anyway. I was a bit tired for a day or two with each infusion. I have been receiving Lanreotide injections monthly for about two years. Initially, I received Octreotide injections monthly. It will be 6 years in January since I was diagnosed. I am 67 and very active so I’m very positive that I’ll be around for a while longer. Early on in treatment I was advised that being overweight was a risk factor, so I purposefully lost 46 pounds and feel better for doing so. I wish you the very best in this journey…. Ron
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@tgsenn70
I'm sure you are looking forward to your husband getting this treatment. We have several discussions devoted to PRRT. I suggest you post this question about radiation, isolation, and tips for sanitizing in one of these groups. Here are the links:
--PRRT Question
https://connect.mayoclinic.org/discussion/prrt-question/?commentsorder=newest#chv4-comment-stream-header
--Post PRRT CT Scans
https://connect.mayoclinic.org/discussion/questions-regarding-post-prrt-ct-scans/
In these groups, you will meet @dbamos1945, @vinnie694, @markmark007, @kim1965, and @sophiarose, and many others who will be able to answer your questions.