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Trigeminal Neuralgia treated with Radiation caused eye numbness
After being treated with LINAC radiation (similar to gamma knife) for Trigeminal Neuralgia, my entire left side of my face is numb including my eye. This is ongoing for 2 years now. Has anyone found a treatment to improve or decrease the numbness from the damage that the radiation causes or found any type of treatment to possibly help regenerate the damaged nerve at the trigeminal nerve bundle? Any recommendations in dealing with this numbness that often times feels like pain itself?
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I have full facial numbness on the entire right side after MVD surgery with ablation. This was my second MVD on that side. My eye is also numb. Woke up 3 weeks post surgery with blurred vision, daytime drops and special nighttime drops is helping considerably. Still biting my lip and tongue a bit while eating, difficult to chew. Gaining weight is an issue, since I lost weight before surgery due to pain. Pain is gone so far! Trying not to despair, that is not a place I want to be. Has anyone had facial numbness slightly improve at all?
I’ve had PN for past 3 years, affecting mostly leg and feet. Then I had sudden onset of bilateral facial numbness that is yet to be diagnosed consistently from medical staff. Some think it is due to TMJ. Others not. It came 2 weeks before I had a tooth abscess, but dentist doesn’t attribute it to that. I had already been told a year ago that my eye had no feeling. But since it didn’t bring pain, I paid it no attention. However, both cheeks feeling like novacaine had been given and now 1/2 worn off, made me reluctantly go down the Google rabbit hole. So now waiting on upcoming Neurology appointment . Meanwhile…..I’ve found apply WARM COMPRESS to cheeks diminishes numbness. I also use a HEATING PAD at night on my leg when restless leg syndrome starts . That really helps! Oh, the surprise joys of aging! Grateful for these groups to be able to learn from others and share .