Just Diagnosed with Tonsil Cancer - How to Treat?

Hmmm.....I, too, had the PET Scan 3 months after completion of treatment with no cancer. My stage One cancer had metastasized into a lymph node in my neck (primary source my tonsil) prior to treatment- that's how my dentist found it! I've also had blood work and CT scans concerning an area on my liver and low white blood cell count (which is finally on a slow path upward). I feel confident in my team and their level of expertise and that the cancer is gone. Now I'm just dealing with actinic keratosis and a spot of squamous cell carcinoma erupting on my face! Radiation: the gift that keeps on giving!

The NavDx blood test is an HPV proprietary test in the US. It's referred to as a blood biopsy. The samples are sent to their lab and results are available in about two weeks. Cost is covered by Medicare and many commercial insurance plans. Not sure about availability outside US.

@johnbonani I had the same thing. I'm a week and a half out of 25 rounds of radiation. Post treatment has been the worst.

Hi @lolliegee,

What was the diagnosis of the liver? Was it just inflammation or a benign cyst/legion? And what were the treatment options?
I just had my usual head/neck and chest CTs a few weeks ago and they found a cyst/legion on my upper liver that was not ever there before so yesterday I had to get an additional abdomen CT exam to make sure it is nothing concerning.

Thanks much in advance.

@roblem -My oncologist said lets wait six months and do blood work and another CT scan to see if anything has changed...if it's the same it will not be a concern. That appt. is in a couple of weeks.

@lollie
So, was it only inflammation?

@roblem : She referred to what she was seeing as a shadowy area- I'll find out more details at my next appointment in October.

@stephenrfleury I lost the most weight post radiation treatment too.

@harleytiger My husband is facing 6 weeks radiation and probably 3 chemo sessions, he has a tumor on his right tonsil and there is something in a gland/lymph node. He is having biopsy on Wed, I suppose we will know what the exact treatment will be when we get biopsy results! How did you deal with the radiation?

@lizzyj58 Hello . First off this a very winnable battle. In particular, if this is HPV +16 as his biopsy will show. Google can certainly take you down the rabbit hole with negative outcomes. Your husband's odds are extremely good!
If this is any help here is my story....I am 58. I was diagnosed with Stage 4 HPV 16+cancer of Base of tongue and Neck March 2023. I had TORS surgery April 2023 to remove base of tongue 3cm tumor ( partial glossectomy )and lymph nodes through right neck dissection. 2 of which had cancer. I opted out of any Chemo treatment. I chose Proton vs Photon Radiation as I feel it is much less damaging . In my opinion Proton is more targeted with less side effects. However, It is a battle as insurance companies do not want to pay for Proton when Photon is 50% less costly or more. Proton is like a pencil beam hitting the target and stopping. Photon is more like a flashlight beam which travels through the target area. I had to drive an hour to Proton treatment. Alot of people drive much further. I had 30 rounds ( ending July 2023) of Proton Radiation to "cleanup" any cancer that may have been left behind from HPV16 base of tongue and Few Lymph nodes . l was very worried about going on a feed tubing , Dysphagia and Not being about to swallow (eat or drink). I started doing mouth, Neck, tongue and swallowing exercises prior to proton Radiation. He may need to seek a Speech therapist as they can help him with this. It was a struggle to eat during radiation and I FORCED myself. He will lose appetite and everything will have no taste. Now the good news... As far as today two years out. I can eat and drink about anything I want. My taste buds are about 95% , My throat mucositis has almost gone away, Saliva production 95% and My stamina is back to about 95% . I will continue to have a throat scope and CT scan every 6 months for two more years or so. So far no evidence of cancer remains. You should also ask about the NavDx Blood test for HPV 16. It will become more important once He has completed his treatment to monitor any HPV 16 cancer activity in his system. My NavDx blood work continues to show no sign of cancer.
Make no mistake this will not be a fun 6 months or so. However, He will make it and things in a year will be looking up. Some things may not taste the same, some slight neck or throat discomfort and a little less energy but He will be alive. There will be a new "normal" but It beats the alternative. Lean on your Faith.