1. < Neuropathy
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Has anyone found a treatment that helps with peripheral neuropathy?

Posted by bigjohnscho @bigjohnscho, Jul 1 10:27am

I suspect that everyone on this forum has been searching for a medication that helps their neuropathy and even though you no that all the internet claims are false we continue to waste hundreds of pounds. Desperation is a powerful force. Has any one been fortunate enough to find a genuine treatment. I just can’t believe that there are so many awful people who prey on our vulnerability and knowingly orchestrate such elaborate scams.

Interested in more discussions like this? Go to the Neuropathy Support Group.

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cmyrule | @cmyrule | Oct 13 1:18pm
In reply to @3740 "@tomlawrencemd EXACTLY! I have NOT found a Cure for CIPN, I’ve tried Acupuncture Red Light Therapy..." + (show)
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@tomlawrencemd EXACTLY! I have NOT found a Cure for CIPN,

I’ve tried Acupuncture Red Light Therapy Chiropractic on and on. THERE IS NO CURE. PERIOD. I’m Hopeful some day it will disappear I have “numb hands and feet. Very difficult to eat and whatever else I try to do with my HANDS. My FEET are also Numb and I need at least a Cane and/or Walker to get around But I’m alive!! Survivor or Prostate Cancer and Stage 4 Lung Cancer. I’ve been Cancer Free since Chemotherapy ended May 2023. HELP PLEASE :)!

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@3740 wow!! That is a lot!! I am sorry!!

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jamessaxo | @jamessaxo | Oct 13 2:56pm

Yes. Since my trigeminal neuralgia I have learned that our nerves( including brain) are coated with an insulating fat called myelin.
When out diet is very high in B12, this insulation is continually renewed. If you look up on Google , the effect alcohol has on B12 absorption you will come to understand. Not to late. Fixed me last yr. Dr. has last week wrote on my file " non drinker" Now 83.

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aldi | @aldi | Oct 14 10:01am
In reply to @willgranger1127 "@aldi Aldi, I have taken Curcumin and Turmeric in the past and didn't think they did..." + (show)
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@aldi Aldi, I have taken Curcumin and Turmeric in the past and didn't think they did much for relieving PN. I think R-ALA ( Alpha lipoic acid) helps a bit. I'm also taking L-citruline/arginine to increase blood flow. That stuff may help a bit. I've tried a lot of things. Magnesium creams on feet several times in 24 hours may also help over time. My next experiment is to put my feet on soft earth for about 15 minutes a few times a week. Dirt is where all the antibodies come from, so it may have something in it for neuropathy. Cut carbs and alcohol. My best!
Will

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@willgranger1127
William, I just tried a cream thats good for people with both back and PN. I have been applying it up to four times a day and it’s made a great difference. It’s applied to a painful spots in the sacro Iliac areas,(not sure of spelling!)
It’s not expensive . It’s called QR or quick relief cream .
I’m also trying to cut carbs and eliminating alcohol. maybe I’ll try my feet in the dirt next. Good luck

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William | @willgranger1127 | Oct 14 10:55am

Aldi,
Thanks for the info. I just started Nervionix cream and it seems to help a lot. I’ll order some QR and give it a try. Today is a good day for me to start Dirt Therapy. I’ll let everyone know if there is healing in the soil…in North Carolina. 😁

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aldi | @aldi | Oct 14 12:12pm

William,The stuff that goes into QR is like the stuff that’s injected in prolotherapy

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marquis113 | @marquis113 | Oct 16 10:14am

Aspercreme and frankincense work for me. I have burning ankles and feet at night. These both seem to help.

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onlinescoop | @onlinescoop | Dec 3 9:54pm
In reply to @arcuri24 "I have no pain and only numbness in my toes. I do get tingling from time..." + (show)
Profile picture for arcuri24 @arcuri24

I have no pain and only numbness in my toes. I do get tingling from time to time in feet and I had felt a bit wobbly when exercising. In April I had an EMG test--ordered by my neurologist and was diagnosed with peripheral neuropathy. I also had unexplained weight loss so I underwent scans, MRI,blood work and ultra sound to rule out cancer. In the meantime, I did some research on vitamins as well as diet. I looked at dietary recommendations for MS and RA and decided to cut back on sugar and gluten. At my visit to the neurologist this past week, when I mentioned the vitamin regimen and the dietary modifications, he suggested a blood test for celiac disease and according to the blood test, I have celiac disease--which probably explains the neuropathy and weight loss. I am awaiting my doctor's input but its pretty clear that I now must avoid gluten to restore my health as much as possible. I am finding out that with neuropathy--especially non-diabetic groups--we must be our own advocates, stay focused and do as much as we have in our power to try to heal. I hope you feel better and can get out of pain.

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@arcuri24 I know this is a lot to ask, but I am wondering if you remember what MRIs and Ultrasounds and Blood work besides cmp, and CBC you had to rule out Cancer (due to your weight loss)? What type of doctor ordered these tests for you?

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onlinescoop | @onlinescoop | Dec 3 9:58pm
In reply to @jamessaxo "@pete555947 2 yrs ago I injured the trigeminal nerve. It runs from jaw hinge to teeth...." + (show)
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@pete555947
2 yrs ago I injured the trigeminal nerve. It runs from jaw hinge to teeth. Pain was intense intermittently and lasting seconds. Had been blowing a lot of alto sax. Took cabama zepine , After a few dental checks my Dr correctly diagnosed it.
Some 2 months ago I started lifting a 20 kg bar vertically. Neck strain strengthened jaw muscles. All symptoms gone.
An artery runs up the outside of brain. The trigeminal nerve crosses it. It's insulating fat (myelin) had been worn away. I read that alcohol stops B12. absorption. B12 (cobalamin) makes myelin. Have not drunk any alcohol for last 3 months. And take a B12 supplement.. Please Google " effect of alcohol on myelin production "

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@jamessaxo what brand and dosage B12 do you take? Thanks!

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jamessaxo | @jamessaxo | Dec 4 12:26am
In reply to @onlinescoop "@jamessaxo what brand and dosage B12 do you take? Thanks!" + (show)
Profile picture for onlinescoop @onlinescoop

@jamessaxo what brand and dosage B12 do you take? Thanks!

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Good health. 50 mgr daily. Am 83. No nerve pain. Bye

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arcuri24 | @arcuri24 | Dec 4 6:29am
In reply to @onlinescoop "@arcuri24 I know this is a lot to ask, but I am wondering if you remember..." + (show)
Profile picture for onlinescoop @onlinescoop

@arcuri24 I know this is a lot to ask, but I am wondering if you remember what MRIs and Ultrasounds and Blood work besides cmp, and CBC you had to rule out Cancer (due to your weight loss)? What type of doctor ordered these tests for you?

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@onlinescoop
I had an MRI of my brain to rule out MS. Also, had ultrasound to rule out ovarian cancer. I also had a CAT scan to rule out pancreatic and stomach cancer. In addition, I had blood tests to rule out blood cancers. The tests were ordered through my primary care doctor who is also a rheumatologist. I finally had a blood test that showed gluten intolerance so I am now eating gluten-free and I did gain some weight. I have always been thin--active metabolism. I hope this is helpful to you.

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