← Return to I have a neuroendocrine tumour in the small bowel and liver lesions

Discussion
Comment receiving replies
Profile picture for vinnie694 @vinnie694

@dbamos1945 Very similar, well differentiated, grade 2, KI67- 6.6% Stage 4 , small intestine, metastasized to liver. Advanced stage.. Absolutely love the statement "I know the little devils are napping" Just a note for hope and prayers for your testing today....

Jump to this post


Replies to "@dbamos1945 Very similar, well differentiated, grade 2, KI67- 6.6% Stage 4 , small intestine, metastasized to..."

@vinnie694
Mine are similar to both, Small intestines with liver mets, stage 2, grade 4, Ki-67 5.4%. Taking Octreotide every 28 days. Feeling good! NET specialist suggested I add everolimus if symptoms change. Oncologist doesn’t feel it’s necessary right now, tumor is less than 1cm. Have my 3 month scan 12/1 & hoping things are still stable. Not looking forward to taking everolimus or PRRT, I have stage 3 CKD so hoping to hold off on both for a while.