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DiscussionI have a neuroendocrine tumour in the small bowel and liver lesions
Neuroendocrine Tumors (NETs) | Last Active: 35 minutes ago | Replies (30)Comment receiving replies
Replies to "@dbamos1945 Very similar, well differentiated, grade 2, KI67- 6.6% Stage 4 , small intestine, metastasized to..."
@vinnie694
Mine are similar to both, Small intestines with liver mets, stage 2, grade 4, Ki-67 5.4%. Taking Octreotide every 28 days. Feeling good! NET specialist suggested I add everolimus if symptoms change. Oncologist doesn’t feel it’s necessary right now, tumor is less than 1cm. Have my 3 month scan 12/1 & hoping things are still stable. Not looking forward to taking everolimus or PRRT, I have stage 3 CKD so hoping to hold off on both for a while.