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@vinnie694 & @Ins83: DIDDO Ins83! I think Vinnie and my NET small bowel cancer is very similar (dx 10/21 well differentiated, grade 1, KI67 -1%, stage 4 w/liver metastases. After dx I did ok w/stability on Lanreotide 28day inj. - until MRI revealed 40% tumor progression!
I chose Beta PRRT Lutathera treatment (6/24-12/24) @ CoHope Duarte & had drastic resolution of most tumors & stability of all. Scans reveal primary tumor smaller than at dx! Doing my 3mo MRI’s and shows continued tumor resolution so far. Tomorrow 10/13/25 is MRI day so will have update soon. Feel good & restoring my ‘ol life! Reality keeps me vigilant ‘cuz I know those lil devils are napping. Hope is alive to keep them in my rear view mirror! dbamos1945

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Replies to "@vinnie694 & @Ins83: DIDDO Ins83! I think Vinnie and my NET small bowel cancer is very..."

@dbamos1945 Very similar, well differentiated, grade 2, KI67- 6.6% Stage 4 , small intestine, metastasized to liver. Advanced stage.. Absolutely love the statement "I know the little devils are napping" Just a note for hope and prayers for your testing today....

@dbamos1945 good luck today.

@dbamos1945
Thanks for sharing. Great to hear PRRT was working for you it is likley my next step on lanreotide every three weeks is not effective enough in keeping little buggers at bay.