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I have a neuroendocrine tumour in the small bowel and liver lesions
Neuroendocrine Tumors (NETs) | Last Active: 1 hour ago | Replies (27)Comment receiving replies
@vinnie694 & @Ins83: DIDDO Ins83! I think Vinnie and my NET small bowel cancer is very similar (dx 10/21 well differentiated, grade 1, KI67 -1%, stage 4 w/liver metastases. After dx I did ok w/stability on Lanreotide 28day inj. - until MRI revealed 40% tumor progression!
I chose Beta PRRT Lutathera treatment (6/24-12/24) @ CoHope Duarte & had drastic resolution of most tumors & stability of all. Scans reveal primary tumor smaller than at dx! Doing my 3mo MRI’s and shows continued tumor resolution so far. Tomorrow 10/13/25 is MRI day so will have update soon. Feel good & restoring my ‘ol life! Reality keeps me vigilant ‘cuz I know those lil devils are napping. Hope is alive to keep them in my rear view mirror! dbamos1945
Replies to "@vinnie694 & @Ins83: DIDDO Ins83! I think Vinnie and my NET small bowel cancer is very..."
@dbamos1945 good luck today.
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@dbamos1945 Very similar, well differentiated, grade 2, KI67- 6.6% Stage 4 , small intestine, metastasized to liver. Advanced stage.. Absolutely love the statement "I know the little devils are napping" Just a note for hope and prayers for your testing today....