← Return to Have MGUS and just caught Covid: Did Covid affect your numbers?

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Profile picture for Patty, Volunteer Mentor @pmm

@scalm I am on 2000 mg of Qunol Curcumin daily. Before I started, I checked with my oncologist, my PCP, who then referred me to their clinic staff pharmacologist and got approval from all of those people before starting the supplement. I have had success in lowering my numbers or at least keeping them stable. I’ve been doing this for a couple of years now.
There’s a lot to consider including other medications, coexisting conditions, and overall health before you start adding supplements.
I agree with you that there is probably very little one can do to forstall progression if the disease is determined.
I was diagnosed several years ago now and my anxiety is largely abated. When I do get anxious, I remind myself that the right of progression for MGUS is very slow. I am likely at 73, to succumb to something else.
Are you having any other symptoms that you could attribute to your MGUS?

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@pmm I was dx. @ age 67 and my numbers so far are low and stable but every 6 months I do get anxious about my blood results. I work 2 days/wk. I have had some fatigue of which not sure if it’s from age or MGUS.
I have been told I would probably succumb to something other than MGUS/MM at my age.
My diet is fairly healthy. I’ve removed extra sugar from my diet the last 10 months. My weakness is exercise and I blame that on my rotator cuff tear pain. Working towards resolving that.
My next blood draw is 11/7. Praying my numbers are better or at least the same.
Best to you.

@pmm thank you for sharing this information. I’m 77. I was diagnosed one year ago. I take no other medication so I am going to look into this supplement. Also I will find out next week if my numbers are up I just had a follow up blood test Monday so it will be my one year follow up. I think I have underlying anxiety with this information. Also my neck and shoulders have to come to knots and I think that’s where my anxiety lies over this. My only thumbs from this are too I have some neuropathy and I have enormous fatigue. I’m one of those it’s rare but there it is. I have to lay it at the feet of this disease as I was the youngest 75 year-old you ever met and the last year has really aged me and slowed me down. But I keep moving forward and remain hopeful of that like you. It will be something else that takes me out. Hugs and again thanks for sharing this message