Evenity and side effects: What helps joint and muscle pain?

Posted by rjkesal123 @rjkesal123, Feb 13, 2024

Hi All,
I received my first Evenity injection two weeks ago. Everything was going well, did not even have injection site pain. But the last couple of days I have had joint and muscle pain especially in my neck and upper back, Lower back and arms. I've read the drug peaks around 7 to 14 days. I am wondering if this is normal, has anyone else experienced this and if these side effects subside? Is there anything you take before or after the injection to relieve this pain? It is very uncomfortable. Thank you!

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

miznancy | @miznancy | Oct 11 12:54pm

In reply to @miznancy "@hammondp2 I think it can be reported on the Eventity site. I'm going to check anyway." + (show)

@miznancy you may report side effects to the FDA at 1-800-FDA-1088.

hammondp2 | @hammondp2 | Oct 12 9:51am

In reply to @miznancy "@hammondp2 I think we all need a break from this suffering. I have to call my..." + (show)

@miznancy
It has been 3 weeks on Monday from last Evenity injections. I am still in severe pain and can't walk. This isn't me.
I have stopped Evenity after 8th treatment. Starting Fosamax in pill form in November.

hammondp2 | @hammondp2 | Oct 12 9:54am

Evenity manufacturer does not care. They kindly take notes of our adverse reactions. They manufacture Prolia so I am afraid to start that drug that has the same side effects.
Evenity has a 64 day shelf life in our body. I hope the side effects go away soon. I am having a hard time with the severe pain.

hammondp2 | @hammondp2 | Oct 12 9:57am

In reply to @hammondp2 "@miznancy I hope you feel better soon, too. Are you still on the Evenity drug." + (show)

@hammondp2
I stopped after my 8th treatment. 2 weeks to the day of the 8th treatment my right arm went numb down to my fingers. The pain was so bad and it happened in an instant at work. I had a colonoscopy the next morning and possibly the IV helped reduce my pain and swelling in my arm

hammondp2 | @hammondp2 | Oct 12 9:58am

Week three after 8th injection of Evenity, my left breast is itching terribly.

I seem to get another side effect on top of the ones that haven't gone away.

miznancy | @miznancy | Oct 12 12:22pm

In reply to @hammondp2 "@miznancy It has been 3 weeks on Monday from last Evenity injections. I am still in..." + (show)

@hammondp2 thank you. I have felt like no one had this but me until finding this site. We are not crazy people or hypochondriacs, but just want our normal life back. I pray that you feel much better soon

ditobin | @ditobin | Oct 13 8:41am

I am going for injection #6 tomorrow. Initially my symptoms for the first 4 injections were long COVID type symptoms combined with mental health issues; which also occurred while attempting a course of Forteo.

The last 2 months have been horrific bone & connective tissue type issues. A severe recurrence of Achilles Tendinitis, neck & back spasms, hip pain, pain in my pelvic bone; especially the ischial tuberosity area (saddle bones). Just makes me feel old & achy. I also have to have a tooth extraction.

I’m a hot mess. I’ve only been taking Tylenol & muscle relaxers. Trying to tough this out, but getting weary. And my husband had to take over the heavy lifting & bending chores. This is NOT me at all, I’ve always been the strong armed woman who could handle & move 50 to 75 lbs no problem. I’m a wet dishcloth now, wrung out. Hoping I can make it to #12, but it’s questionable. Hope this helps someone else in pain to know you’re not alone. Grateful to have connected to this group, if only to gripe !

clj9821 | @clj9821 | Oct 13 10:52am

All of the above sounds like me.. on and off. Going for #9 on Friday. I am also tapering off very high doses of Prednisone and that’s a whole new world of horrible neck, hips, back pain. Bless us all~

hammondp2 | @hammondp2 | Oct 13 11:39am

In reply to @miznancy "@hammondp2 thank you. I have felt like no one had this but me until finding this..." + (show)

@miznancy
Thank you. I hope you get better too.
I woke up last night in so much pain in my leg and now my back feels numb. My breast is now itching constantly. Now my left arm hurts.