← Return to Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

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Profile picture for vivoconte @vivoconte

@leene808, gracias me interesa conocer tu experiencia. Yo empecé con 31 años y tengo 42.

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Replies to "@leene808, gracias me interesa conocer tu experiencia. Yo empecé con 31 años y tengo 42."

@vivoconte I was able to raise two kids have a marriage go to nursing school get a job at the hospital worked long shifts then change to home care continue to provide nursing care to the elderly in their homes. I stayed on hydroxyurea 500 mg once a day took very little aspirin made me bleed so I didn’t take that but maybe once a week I always wondered when the use of hydroxyurea would cause me to have problems. I am starting to have heart failure now so as of this week, I switched to injections of besRemi. I take this every two weeks for as long as I can afford it and I’ll see what happens. It always seems like I’m waiting for another shoe to drop but so far I think I’ve done OK eating healthy, keeping some exercise and staying hydrated. I get a lot of sleep and I think that helps. There’s hope for a very long and happy life. You are young just like me when you were diagnosed. I’d always hoped that there would be someone who could come up with a cure by now, but you might be lucky enough by the time you’re my age to find that good luck and I hope you do well over the coming years. You’ll have plenty!!💕