1. < Polymyalgia Rheumatica (PMR)
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Inverse relation between sleep and PMR symptoms

Posted by eakin @eakin, Sep 28 11:53am

I am tapering prednisone, currently at 10 or 11 mg. I observe that when I sleep poorly (up for part of the night, or rising at 4:30) my PMR pain and stiffness is reduced in the morning. If I only get up once or twice for the bathroom but sleep OK, it will be a bad morning: more discomfort, more fatigue. (The sleep issues existed before the PMR and prednisone.) Is this common? Symptoms increase with more overnight inactivity?

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wendy517 | @wendy517 | 13 hours ago
In reply to @caroljeand "@wendy517 The problem with PMR is we don’t “look” sick so it’s hard for others to..." + (show)
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@wendy517
The problem with PMR is we don’t “look” sick so it’s hard for others to understand what we are going through.
That’s why it’s helpful talking to those of us who understand.

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@caroljeand
Thank you for validating that for me. Its crazy when you have so many around you that you know think you're fine and have to be faking it, you end up starting to question yourself. Like, am I a wimp and can't take it?? I broke my thumb, got it casted and skied the next day with socks over my cast. I work through pain so I know I'm not a wimp.

TU!!!

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caroljeand | @caroljeand | 11 hours ago
In reply to @wendy517 "@caroljeand Thank you for validating that for me. Its crazy when you have so many around..." + (show)
Profile picture for wendy517 @wendy517

@caroljeand
Thank you for validating that for me. Its crazy when you have so many around you that you know think you're fine and have to be faking it, you end up starting to question yourself. Like, am I a wimp and can't take it?? I broke my thumb, got it casted and skied the next day with socks over my cast. I work through pain so I know I'm not a wimp.

TU!!!

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@wendy517
You are welcome. I was recently diagnosed and am terrified about the future. It’s not my lifestyle to be sedentary.
This condition is so unpredictable that that in itself causes stress for me. I saw what my mother went through with it decades ago. I guess we hit the lottery with only one half of one percent in the US having this.
Best wishes for your recovery, whatever that means for us. 🙏🏻

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