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Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Blood Cancers & Disorders | Last Active: Nov 1 7:29pm | Replies (36)
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Profile picture for davi0937 @davi0937

Thank you @1pearl - maybe we will do the BMT at the same time 5 years from now! I’ve read the CALR is the least risky mutation- that is good!

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Replies to "Thank you @1pearl - maybe we will do the BMT at the same time 5 years..."
1pearl | @1pearl | Oct 11 3:19pm

❤️

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1pearl | @1pearl | Oct 12 10:59pm

@davi0937
I appreciate knowing that if I do need to have a BMT in five years, I will have someone along to do one with me. Hopefully, both of us will never need a BMT then or ever. Maybe what they are working on in trials still for CALR will be found to be a cure to lower our CALR mutation percent so no BMT needed. That would be my preference. In the meantime, I hope we both continue to feel just fine. Are you taking any other meds or just what you get for the trial you are in to increase your hemoglobin? Thanks for sharing.

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