Evenity and side effects: What helps joint and muscle pain?

Posted by rjkesal123 @rjkesal123, Feb 13, 2024

Hi All,
I received my first Evenity injection two weeks ago. Everything was going well, did not even have injection site pain. But the last couple of days I have had joint and muscle pain especially in my neck and upper back, Lower back and arms. I've read the drug peaks around 7 to 14 days. I am wondering if this is normal, has anyone else experienced this and if these side effects subside? Is there anything you take before or after the injection to relieve this pain? It is very uncomfortable. Thank you!

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Profile picture for hammondp2 @hammondp2

@miznancy
I was at work the other day and all of a sudden my arm went numb. I was massaging my arm until I got home.
My fingers were swollen and I couldn't use my right arm.
I had them give me 2 injections last month in my right arm because of breast cancer a few years ago.
The next day I had a colonoscopy and the nurse started an IV in the same hand as the swelling. When they administered the anesthesia my body went jumping and the pain was the worse pain ever for anesthesia. I was fighting for my life and then I thought I died when I finally fell asleep.
I woke up and couldn't stop crying because I was alive.
Later that day the swelling was finally going away. It was like a miracle. By the evening I was able to use my hand again.

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@hammondp2 that must have been so traumatic. I hope that it never occurs again. I am so sad for you

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Profile picture for hammondp2 @hammondp2

I get painful side effects between the 7 and 14 days. It has been unbearable.
I stayed in it for 8 months but the doctor agreed to stop since now I can barely walk.

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@hammondp2 thank you. That is how I feel. And always abnormally exhausted. I hope you feel better SOON

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I haven’t found anything to help. The pains in my neck are terrible. X rays showed nothing and I haven’t done anything except the injections 😢

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Profile picture for hammondp2 @hammondp2

@miznancy
Me too. If only the doctors can try it to see how we feel. I can't take the pain anymore.

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@hammondp2 I agree. Tired of being blown off Doctors are often in thrall to pharmaceutical company

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Profile picture for miznancy @miznancy

@hammondp2 thank you. That is how I feel. And always abnormally exhausted. I hope you feel better SOON

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@miznancy
Thank you.
I just want the pain to go away. Has anyone found anything to help with this pain.

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Profile picture for miznancy @miznancy

I haven’t found anything to help. The pains in my neck are terrible. X rays showed nothing and I haven’t done anything except the injections 😢

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@miznancy
Sorry you are in pain too. My neck is popping now which just started with Evenity.
My doctor gave me a form to report my side effects to the FDA.
I lost the form because I don't feel good.

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Profile picture for miznancy @miznancy

@hammondp2 that must have been so traumatic. I hope that it never occurs again. I am so sad for you

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@miznancy
Thank you. I keep hoping I will wake up one morning and without pain.
Evenity has a 74 day shelf life and I am at 21 days. I hope it happens sooner.

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Profile picture for miznancy @miznancy

@hammondp2 thank you. That is how I feel. And always abnormally exhausted. I hope you feel better SOON

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@miznancy
I hope you feel better soon, too.
Are you still on the Evenity drug.

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Profile picture for hammondp2 @hammondp2

@miznancy
Thank you. I keep hoping I will wake up one morning and without pain.
Evenity has a 74 day shelf life and I am at 21 days. I hope it happens sooner.

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@hammondp2 I think we all need a break from this suffering. I have to call my doctor
tomorrow to let him know I just can't do this anymore. And I need a break from any of the osteoporosis meds for a bit. Let us know how you are feeling in a few days

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Profile picture for hammondp2 @hammondp2

@miznancy
Sorry you are in pain too. My neck is popping now which just started with Evenity.
My doctor gave me a form to report my side effects to the FDA.
I lost the form because I don't feel good.

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@hammondp2 I think it can be reported on the Eventity site. I'm going to check anyway.

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