@vickieannb57
Thank you for your information. Honestly, I would like to have another opinion out of the Medicare Advantage Plan I chose and have not done that. My O/H thought I had ET in January 2025 with CALR1 mutation but she changed it to primary myelofibrosis in February 2025 after I requested a bone marrow biopsy she said I did not need. I think that is why she changed my diagnosis. I did not pay anything for it as no copay. Then she sent me for pelvic CT and that came back with no enlarged spleen. I did not pay anything for that either as no copay. She sent me to bone marrow transplant specialist and he said no transplant needed now and may never need one or at least not for a long time. I did not pay anything for that either as no copay. He said there is no age restriction for bone marrow transplant if one is fit and healthy so I should stay that way like I am now. Currently I do take daily low dose aspirin only as on labs my platelets are high, red cells normal, and white cells only slightly high. I have no symptoms. I do daily exercise and eat well and am good weight at 106 for my height of 5 foot 2.5 inches. If I truly have myelofibrosis and develop symptoms, I would need to take meds that are costly. I would receive astronomical bills from my Advantage Plan if I needed to take those meds I know. Since it is possible that I might need to take them in the future, I agree that it would be good idea for me to change from what I have. I am just not sure what to change to still! When I signed up for Medicare when I turned 65 last year, I was very healthy and still feel like I am but I do have high platelets. Thanks for listening.