← Return to How can I be a supportive caregiver? HPV Squamous Cell Carcinoma
DiscussionHow can I be a supportive caregiver? HPV Squamous Cell Carcinoma
Head & Neck Cancer | Last Active: Mar 11, 2023 | Replies (49)Comment receiving replies
Replies to "Today we got "the" phone call! The one that says.. we are so sorry... your husband..."
Excellent advice
No Loli- These are all great great ideas! I have no idea what all I need or dont need.. your help along with others is invaluable to me! I dont anticipate any help from family as none live close by or have even said they are coming to Omaha when he has surgery! I think Im on my own so I have to be very prepared!! Thank you again so much!
Sandy
Thank you Teresa! I will check into her book!!
Sandy
@chapmanswife You will enjoy it, Sandy. She brings her faith into her health situation beautifully! Teresa
I think the first one should be for test results. It worked for me to have at least three copies to hand out to the different doctors you will be seeing. I know they will offer to make copies, but it is best to keep the original always in your book. Keeping a few sheets of lose paper in each divider works really well (you already figured that yourself). The second one is good for doctors. I printed their info from the internet, with their picture, and inserted loose paper after each doctor for notes. In this divider, get a plastic sheet with dividers for cards, that way you will have a directory with the cards you will be handed at their offices.Insurance and receipts is another one. Also keep copies of his insurance in there to hand out. Another divider for appointments. Another for medications and make copies as well to hand out., etc. The calendar is a great idea. That could be your cover.
Whenever you see a doctor, bring a list of questions with you, with spaces for the answers. If you feel tired or too overwhelmed, bring with you a fresh mind that can take notes for you. Remember that from now on, you are the caregiver, and you need to be strong, rested, and well fed. Do not be a super woman, and request help from family and friends. They can bring food, and seat down with your patient while you take a gulp of fresh air. There is a computer program called "Lots of helping hands", that works wonders to organize help from others. It is a great idea to have a group text to communicate the progress. When it becomes necessary, you can delegate someone to do the reporting.
Maybe I am going too far, and overwhelm you myself! Hope for the best, prepare for the worst kind of thing. I just want to help as much as I can.
Love and prayers, Loli