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New alarming symptoms
I have been diagnosed with Fibromyalgia for over 20 years now. My main symptoms were fatigue and minor pain in muscles.
Three years ago I began experiencing severe dizziness and syncope (fainting). No one can figure out why or ever connected it to my Fibromyalgia. In the last year, I have lost over 20% of my body weight (mostly muscle mass in my legs and arms) and for the last three months I’ve been experiencing extreme pain in all my muscles They have tested me for everything related to inflammatory and autoimmune diseases and even did a MRI of my brain. All of it came back negative.
Could this all be the Fibromyalgia? Has anyone else experienced these symptoms?
I would appreciate any and all advice, experience and opinions.
Thanks
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I was loosely diagnosed about 14 years ago and have been repeatedly treated with antidepressants. Back in April I started to have a flareup. I have had months of chronic pain and burning in my legs. My blood pressure gets really low late afternoon night and mornings which comes with dizziness and fainting. Iv lost just over a stone and now I'm getting tingling in my fingers and toes.
Iv had 3 lots of blood work in as many months which are all clear. I am starting to feel a little better, blood pressure has improved but the fatigue is still hovering. Im afraid it sounds like Fibromyalgia with differing symptoms that are not as commonly connected.I hope everything eases soon
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1 ReactionYes, I have. I was diagnosed at 18. I was in pain almost daily for 45 years and the last ten years included widespread severe joint and muscle pain, which was impervious to over the counter pain relief medication. I've never had a physician who would prescribe opiates, but my first lasting relief came from Duloxetine (brand name Cymbalta). This med provided a lot of relief for tender points, but not as much for my aching limbs. Then I found LDN - low dose naltrexone. Before it became known as a treatment for Long Covid, it was discovered to be an effective treatment for fibromyalgia, as well as ME/CFS. It was an absolute MIRACLE medicine for me. For the first time in my adult life, I was pain free. I was astounded by the relief. A loved one even said to me, "Hey, your back is completely smooth! All the lumps are gone!" I knew I could feel all the knotted muscles, but I had no idea they were visible.
It has no narcotic type of effects and I have no side effects from it. Life changing.
You may want to check out https://ldnresearchtrust.org/what-is-low-dose-naltrexone-ldn
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1 Reaction@jemmasaer80 this sounds like ME/CFS or Long Covid with POTS, postural orthostatic tachycardia syndrome. Ask your doctor about these possible diagnoses.
Yes, this sounds very familiar. The muscle pain has greatly increased and I’ve also lost muscle mass despite exercise. My psychiatrist gave me some tough love. He said, this isn’t going away so you need to learn to deal with it better. This group certainly helps. I feel for you
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