Pancreatic Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Dec 3, 2019

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

castell | @castell | 17 hours ago

In reply to @kuma "@kuma “No Evidence of disease l” did “scans” give rise to this?" + (show)

@kuma

I had CT scans for a year or two after my surgery, and again about five years later. There were no signs of a return of cancer.

My CA 19-9 at diagnosis was about 1300. After 4 months of neoadjuvant chemotherapy with Abraxane and Gemcitabine it came down to around 20, exceptional efficacy.

Doctors have told me any recurrence is likely to show up in an elevated CA 19-9 before it is evident in scans. My CA 19-9 has been tested yearly and it has been around 10 for several years.