Long COVID exists for 5+ years: Share what has or not worked for you

Posted by chuckstran @chuckstran, 6 days ago

It is out of my skepticism and disillusioment that I have pro-actively sought the truth, and found much of it elsewhere than in conventional medicine's approach to dealing with my own long COVID.

That's what led me to this board, where I have learned much and have contributed what I can.

The medical community has been dealing with long COVID for five long years.

Isn't that long enough for treating brain fog and post-exertion fatigue with amped-up doses of creatine and L-glutamie to become widespread?

Isn't that long enough for using NAC, guiafeninsen, and/or mullien to combat the respiratory effects of long COVID to become widespread?

Are we left to trust our altruistic philathropic benefactors, such as Bill Gates, to back away from his moneychanging tables at Moderna and let us in on what is readily at hand that works? Or do big pharma, in league with power politics, have too big a grip on our healthcare?

My personal care physician is a good man, a good doc, and is doing the best he can. But even he and those like him have a big patch of tall weeds to find their way through, in searching for the truth which they in turn attempt to deliver to us. And he and others like him, along with some of us, have reason for our skepticism.

But in our skepticism we must press on, encourage one another, share what works and what doesn't, verify what is successful - and then trust.

Be strong, and of good courage. God has not forgotten us. Trust Him, hope in Him, and press on.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

vostie | @vostie | 3 days ago

Before getting long Covid five years ago, I did a lot of medical research and it does take seven or eight years sometimes more like 10 for new treatments and medications to be developed towards disease.

For me, my shortness of breath, fatigue, post exercise malaise, and all of my skin issues are being addressed about 75% by low-dose naltrexone. It is the only thing that I have found in my five-year journey that makes any difference in my day-to-day activities.

froggiiii | @froggiiii | 3 days ago

There is what seems to me to be endless information on the web. Some with a medical base, much with only hope.
Have had a variety of symptoms since Jan. 2021.
I've gone thru low dose naltrexone, 3 stellate ganglion blocks and 6 months of nicotine patches. I don't think any of these were much help.
Quiet, low stress lifestyle, simple routine diet, meditation and most days 12 hours resting or sleeping have me mostly functional.
Had to start a blood pressure (BP) med (now down to 25 mg Losarten daily).
Also started Duloxitine (Cymbalta) 20mg 2x daily).
BP is stable now and I think the Duloxitine helps.
Still waiting and hoping..

greenshade | @greenshade | 2 days ago

In reply to @froggiiii "There is what seems to me to be endless information on the web. Some with a..." + (show)

@froggiiii It is a journey in the dark to a large extent: trying this and that to see if anything helps. And if something does help, it is often difficult to tell what it is, as we typically are trying many things at the same time and cannot differentiate. I do agree with your "Quiet, low stress lifestyle, simple routine diet, meditation and most days 12 hours resting or sleeping..." Can't go wrong with that! Take care and keep looking up.

mishabear2025 | @mishabear2025 | 1 day ago

In reply to @chuckstran "@greenshade Main issues for all of us seem to be, in no prticular order, 1.) fatigue,..." + (show)

@chuckstran
I am 87years old and tested positive 3years ago. I have experienced all the same symptoms you have described for the last 3years. I thought it was being 87years old and having abused my body I was paying the price.
3months after my last booster shot November of 2023
I became a total invalid unable to function.
This took only days to occur so I knew something was VERY wrong. I got on my computer and goggled long covid. Upped popped the MAYO CLINIC and a study in progress with all the same symptoms I was experiencing. I called the clinic to ask if I could participate; only if I became a patient of the MAYO CLINIC in Rochester Minnesota.
That was 2years ago. Now, I'm on a site to discuss long covid. [[PROGRESS]]
I am 0ne month into doctor Peter McCullough's spike protein detox. It's working.
Mishabear

greenshade | @greenshade | 1 day ago

In reply to @mishabear2025 "@chuckstran I am 87years old and tested positive 3years ago. I have experienced all the same..." + (show)

@mishabear2025 Oh, I am so sorry to hear of your setback. You are about ten years my senior. Dealing with LC at our age is fraught with all the normal aspects of aging. It sounds as though the spike protein detox is working for you, and I hope you recover fully. Keep looking up!

fourleaf | @fourleaf | 1 day ago

@chuckstran

Click on the link
https://connect.mayoclinic.org/comment/1413521/

klf58 | @klf58 | 13 hours ago

In reply to @mishabear2025 "@chuckstran I am 87years old and tested positive 3years ago. I have experienced all the same..." + (show)

@mishabear2025 I will look up that protocol. glad it's helping you.

BeBold | @bebold | 11 hours ago

I believe I am finally "recovered." No more brain fog, shortness of breath (tho I'm not sure my pO2 will ever be above 92 when sleeping without oxygen or cpap with O2.) But I don't need it during the day anymore. And its a toss up if my blood pressure will ever be normal again so I can get off drugs for hypertension, but with meds, its stable so I call that good enough for now. Basically I have my energy back and can walk without SOB and pulse of 130!

Its hard to tell at some point even if ypu feel better as I think it can take a long time to even start to notice small shifts. I was probably "getting better" long before I noticed I was feeling so much better I could say I don't have it anymore. Time will tell if its gone vs remission. I mean tho my epilepsy is controlled by meds, I still have it.

Maybe we all will always "have it - but in remission? Any other thoughts to contribute?

greenshade | @greenshade | 7 hours ago

In reply to @bebold "I believe I am finally "recovered." No more brain fog, shortness of breath (tho I'm not..." + (show)

@bebold Your comments hit home with me. When improvements are so incremental, it is difficult to say when you actually feel better. My situation seems to follow an up-and-down trajectory. I will feel better for hours or days, even, but then slump again. I was definitely doing much better until I took the last booster in Oct 2023. I had mornings when I woke up feeling so energized and eager to get out and own the day. Since my setback, I no longer have those mornings. I hope that they will return.

dfranzen | @dfranzen | 6 hours ago

In reply to @mishabear2025 "@chuckstran I am 87years old and tested positive 3years ago. I have experienced all the same..." + (show)

@mishabear2025
I am 77 and have been experiencing long covid symptoms for 5 years. My Primary Care Physicians ignored my complaints, suggesting they were due to aging. I was forced to quit working and I isolated myself. Two months ago I decided to try again. I found a functional doctor who treated me with compassion and respect. I am now being tested for long covid.

Did you learn anything helpful at the Covid Recovery Clinic?

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