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Myelofibrosis: Anyone have experience with Vonjo (pacritinib)?

Blood Cancers & Disorders | Last Active: Nov 1 7:29pm | Replies (36)
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Profile picture for hanya @hanya

Hello friends!!
I have confirmed MYELOFIBROSIS! Just started taking OJJAARA ABOUT TEN DAYS AGO ! This is post PV L
POLYCYTHEMIA VERA !
I would really like to START A MYELOFIBROSIS chat on this site ! I do not see many posts about this ?
I have not BEEN ON VONJO
SO CAN NOT COMMENT
MY DOCTOR DID MENTION IT
BUT I AM OK TAKING OJJAARA ! I WILL HAVE MY FIRST BLOOD WORK IN FIVE DAYS!! Excited to see the results
Because NO BAD SIDE EFFECTS !! Good friends

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Replies to "Hello friends!! I have confirmed MYELOFIBROSIS! Just started taking OJJAARA ABOUT TEN DAYS AGO ! This..."
heimbca | @heimbca | Oct 11 12:17am

@hanya

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rivieramaya2009 | @rivieramaya2009 | Oct 15 11:56am

@hanya I was diagnosed with MF, June 2025 after 30 years with ET. Presently, not taking meds—“wait and see”. Not awful side effects, but there. Stomach aches, headaches, fatigue, joint pain in one shoulder, just not feeling well! Like you said, hard to find out much about this rare disease anywhere! I pray your test results improve. Let’s stay in touch!

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