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Looking for research re: taking AI drugs vs not taking them

Posted by celestebradham @celestebradham, Jan 4 10:38am

I am currently taking Exemestane. I’m 61. Took a while but I’m doing well on it (doing yoga, pranayama and acupuncture). I now have osteopenia after taking it six months. I’m trying to find research on taking AIs vs not taking. What I’m finding there is not much difference between taking and not taking. But more likely to get arthritis and osteoporosis.
Can anyone post links. .

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prc73 | @prc73 | 2 days ago
In reply to @brightlight66 "@dlardin No, this was the Predict Breast Tool Online. I didn't do Oncotype Dx test as..." + (show)
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@dlardin No, this was the Predict Breast Tool Online. I didn't do Oncotype Dx test as my oncologist said it's only to see if I needed chemo and he said that I did.
Once you fill out all the information...you can put in whatever you've done such as chemo and radiation and tumor size, etc. You can look at taking Zero AIs, 5 year AIs or 10 year AIs to see if it makes any difference.
Two things: Take the UPDATED test here.
https://breast.v3.predict.cam/tool
Then after adding in all information, it says 'Try removing treatments to see the effect it has on survival" in smaller print on bottom right and click on the text. You can add Zero AI or 5 year AI or 10 year AI to see how much of a difference it makes on survival. It's more about survival than recurrence.

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@brightlight66 wow I just took it . I have recently finished chemotherapy and my oncologist wants to do AI. I am having some major side effects from this last dose so oncologist wanted to wait another month before starting AI's. Without AI predict has me at a 98 percent of surviving first 5 years , 95 percent at 10 years and 91 percent at 15 years . I think those are stats I can live with..

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brightlight66 | @brightlight66 | 2 days ago
In reply to @prc73 "@brightlight66 wow I just took it . I have recently finished chemotherapy and my oncologist wants..." + (show)
Profile picture for prc73 @prc73

@brightlight66 wow I just took it . I have recently finished chemotherapy and my oncologist wants to do AI. I am having some major side effects from this last dose so oncologist wanted to wait another month before starting AI's. Without AI predict has me at a 98 percent of surviving first 5 years , 95 percent at 10 years and 91 percent at 15 years . I think those are stats I can live with..

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@prc73 Excellent! Your stats are great.

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wyowyld | @wyowyld | 1 day ago
In reply to @brooklyn22 "I’m not wanting to try A1 either I have 100% E&P her2Neg just finished target rad..." + (show)
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I’m not wanting to try A1 either I have 100% E&P her2Neg just finished target rad with an Onco at 3!!! Ki67-10 no nodes! Lumpectomy successful
I’m hearing too many negatives on hormone receptors I’m 70 and live healthy - I asked for numbers Wht if you don’t take pills they say 3-9% of recurrence?? Is it worth this there are no guarantees .

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@brooklyn22 I am 69, onco score 5, KI-67 - 3. I chose not to take them. I also live healthy and when I weighted the decision of dealing with brain fog, joint pain, weight gain, osteoporosis, eye problems, and all the other potential side affects, (I do know not everyone gets them) decided to take on the small risk (in my case) of foregoing them. I am hopeful the next 10 years are the best!!! I did have 5 targeted sessions of radiation and was told the AI's would reduce my overall risk by 1%. Good luck.

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